I was diagnosed 3 years ago, as I write this I am having a bad flare up of mouth ulcers, nearly 3 days without a proper meal. The pain is horrendous. I have been on a course of colchicine now for a few months, which is helping the pain in my legs, and seems to be keeping the pus like spots on my legs at bay. The users down below are frequent but manageable now I have the right creams, I would suggest to anyone not using it, to have lidocaine prescribed, just to aid toileting. No fun running a bath so hot that it burns, just to take the pain away from going a wee. I'm 29 now, I hope it doesn't get any worse, my mum suffered from iritis 3 years ago which has scared me allot. Doesn't seem like there is enough knowledge of this disease out there.

Hi, I have had mouth ulcers since I was 17 years old(I am now 44). Sometimes I can have 2 or 3 but sometimes I have had up to 20. I live with them all the time so I get on with it. Last month, I got my first ulcer on my vulva, this month, I had three ulcers down below. That is when I went to the GUM clinic. I was certain that it was not STD as I have been married 18 years and neither of us have had extramarital affairs, so I was not surprised that all the tests came back negative. At this point the gyni Dr mentioned Bechets Syndrome. I have seen a dermatologist specialist who now wants to undertake more tests and she suggests it may be an auto-immune decease but who knows for sure, its hard to diagnose the syndrome I believe. I also developed a skin problem 17 years ago with my hands and feet in which the top layer blisters up and then peels off. It doesn't hurt but is unsightly and I used hydrocortisone cream to dum down the flare ups, though nothing has cured it.

My boyfreind suffers from Behcet's disease. He is having a bad flare up as of now and we are having a really hard time coping. The steroids and pain medications he is on make him very angry twards me. I take care of him as best I can, but it seems like nothing I do is ever enough. Are the any suggestions from any of you which have also been diagnosed as to keeping the lesions under control? We have been tryin baby powder but it seems like he keeps on getting worse. Does anyone know if public health nurses take cases such as this? Also, is social securtiy income available for him? I am the only one working, paying bills, rent, and prescriptions. Oh lord, help me please.

Hi, I have constant mouth ulcers and genital ulcers and I have suffered from these all my life, not constantly but since I have had my one year old I seem to have them constantly. i have been to the doctors many times but they keep telling me i have bacterial vaginosis and I am very run down, i also had a blood clot in my arm 2 years ago despite me being only 8 stone and 27 years old and i have never taken the pill, i was told by my consultant I was just unlucky..i have been told by the doctors i am tired all the time due to me having 3 children...could I have the symptoms of Behcets..The ulcers I describe are constant down below but they come and go in my mouth since having my son, who is one I would have a bout of ulcers in my mouth every other week and down below is constant..I have had 7 lots of antibiotics in the last year these work for around a week after and then the symptoms come back..It's extremely painful..The ulcers down below are always filled with puss (sorry to much information..) and are extremely painful..Do you think that the mouth ulcers and genital ulcers are linked or do you think I am just run down..Which ever I would really like to get to the bottom of them and I have heard that my blood clot could be linked to behcets..Any ideas??

hello i have been diangnosed for behchets disease and im only fourteen althought i was only 13 at the time. i cannot eat yeast because it agrevates them and also too much sugar. I started off with genital alcers and then i get tons in my mouth althought i was able to get rid of them they still reapear im currently taking medication and i hope i have been helpful. and thank you for the help

Hi everyone I feel sorry for you may god make it easy for everyone. I am having behcet since I was 15 years old. I have lost my both eyes and hands when I 11 years old. Now I feel if I had behcet only problem I will be the most happy person even though behcet gives me the hardist time in this world. I hope you are all going to be better soon. Best wishes Islam

hi my name is tina my brother has got behcets sydm he has the rare type hes never had uclers in his mouth they are in his tummy he also had cists on his brain wich has caursed momery lose he cant be left on his own i look after him when his wife gos to work hes 37 years old and the pain that he gets is so bad sometimes its upsettin cause we cant do nothin for him hes on steriods there has to be more that can be done xxx

My 5 year old daughter has been diagnosed with BD after a lifetime of symptoms. There still appears to be little known about this condition long term especially in children as young as my little one.

HI guys my names nicole and i've had genital ulcers and yes they are VERY painful! )": i started getting it when i turned 12 coming back from my grandparents house in Romania. Im 15 now and it looks like once a year i used to get it. Notice how i said "used to get it" Well im not sure if you might believe in Jesus but i sure do and i know that he's healed me and i wont ever get it again. Im still a virgin and i dont think its fair at all how i get these. So many of my friends are not virgins and go around with alot of guys and they have nothing wrong with them, why should i suffer this stupid disease??? To who ever is reading this i hope you get healed too i know it suck and its so painful :/ well hope everyone going throught it right now gets out of it with a smile on their face. God does heal :D trust me ! thats your cure lol -God bless you guys

Hi I have had very angry mouth ulcers, some can last up to nearly a month , and can get up to around 20 at a time, this makes me feel really down, not want to even talk and hardly eat, I can't even kiss my fiancé at all sometimes and thi alone puts a massive strain on me, no doctor know what it is and I've had numerous blood tests, but still nothing, I am otherwise very fit, active, healthy, happy and eat well, I drink some wknds, don't do drugs and have never smoked, pls help , thanks, Ashley from Bristol.