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Conditions

Benign Essential Tremor

Benign Essential Tremor

Benign essential tremor sends your hands to jelly. Tremor quite simply causes your hands to shake – considerably and constantly, thus shattering any aspirations of a career in brain surgery. Whilst it might not sound that serious if the condition deteriorates those afflicted may find it increasingly problematic to carry out the simplest of tasks such as writing, using cutlery, and – let’s not shy away from it – wiping their bum. Benign Essential Tremor has a habit of flaring up and becoming worse when a person is stressed, tired, angry, anxious, hot or cold. A high level of adrenaline in the body can also heighten the shaking as can caffeine and some prescribed medicines. It isn’t just the hands that can be affected; infrequently the voice, face and upper body have known to suffer too though there is some release as tremor usually fades when resting or moving. If the tremor is so bad that it’s affecting your day-to-day life then there are a few things that can ease the symptoms. Beta blockers, anti-convulsants or even a deep brain simulator have all proven affective in a high percentage of cases and (whilst it should in no way be relied upon) one or two units of alcohol have been shown to temporarily relieve the tremor completely, which can be particularly helpful before you give that important speech, or go out on that big date.

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Hi all, I have all the symptoms of ET but haven't been diagnosed with it officially. Just wondering some sites say avoiding alcohol and caffeine, yet others say taking alcohol helps. Can anyone help? Has anyone stopped taking alcohol who has ET? Thank you.





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i was diagnosed when I was 16, im now 20. I find that the beta blockers don't really help, whether I take them or not I still have constant tremors all over my body. it does effect everyday life and I don't think theres enough knowledge about it in everyday life. If it effects something in my job I just get told I am incompetent. but that's something we have to deal with. but I figure with everything the condition throws at us we just get stronger.





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Hi there Rachel, I am a suffer of essential tremor ages 25, being diagnosed aged 13. Beta blockers are one of many options drug wise. Cutting out caffeine and relaxation techniques can help. I have taken up weight lifting as this helped a lot. There is a new treatment called Focused Ultrasound, they should begin trials in the United Kingdom in the next couple of years. I'm currently communicating with the company in Israel and Switzerland about it. It won't be around for ever. Hope this helps

I have had ET since I was 30, is it true a pace maker will stop it.





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Hi! I have essential tremor since i was very young. But it was only on hands. Now i'm 19 years old and i have ET all over my body, and it gets worse when i do a voluntary move (like grabbing a glass) or doing exercise. I stutter as well, and i'm afraid to get a job because i don't want people to know that i stutter and shake. When i go out with my friends I feel more relaxed because they know that i have that problem, but I don't feel confortable anymore meeting new people, dinning with all my family (excluding my dad, mom or brother), in short, doing something that improves my tremors and stuttering in front of people that i don't usually talk. Now, i get anxious and embarassed easily, and, of course, it improves my tremors, so im avoiding getting in embarassing situations, like staying at home all the time, dont talking to people that I'm not used to talk. All I want to do in my life is to meet new people, having a girlfriend, have a job and start buying material to create a home studio to start producing some music, and this is stopping me from doing that. P.S: Sorry for my english





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another long term sufferer here who has survived without taking beta blockers, though with the way things are worsening, i might have to go down that route. However me and the docs are investigating an unrelated issue and they re loath to put me on something that may mask my current issue so it means i have to soldier on; only big problem is i selling stuff for a living, and hand shaking doesn't help one bit. It would be great to see some other solutions in the market but presume we're not an attractive group to develop medicines for





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I have had essential tremors all my life, I was diagnosed some time before the age of 10. It runs through my father's side of the family. All my life people have noticed it and commented on it especially at school. I have always struggled writing and have to write slowly to ensure that it is legible it wasn't until I was 17 that a teacher suggested I apply for extra time, I would suggest asking about it if anyone else is affected. I'm now working and training as a chef, I've explained it to my employer and he acts all understanding until were in service and the pressure is on, at which point it gets worse and all he does is yell. eating and drinking are difficult I have to use both hands to hold a cup/glass. Alcohol does help but I have the same issue some one mentioned above, in a crowded bar I cannt hold my drink without spilling it.





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im 27 and ive suffered with ET since i was 14. ive always carried on as best i can for years but in the last year my shakes have gotten significately worse my head, hands and sometimes legs and feet now shake. ive tried beta blockers but had bad side affects with them ive even tried anti convulsants but found i was worse the following day. its now effecting my ability to do my job and drive. i dont know wot else i can try im getting really down because of it.





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Joins a Facebook Essential Tremor group in your country UK/Australia/USA/Canada all have great friendly site I run the Essential Tremor Australia site..We work on Living as there is not much we can do about ET.If we don't learn to live them ET WINS.And we cant have that.Also we work with Anxiety and stress Control





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Hi. I am 61. I have had tremors in my voice and hands since I was in 3rd or 4th grade. I remember kids making fun of me. I love music and had a strong disposition to play an instrument. Unfortunately I chose the guitar.I have been playing professionally since I was 15. I became a good jazz, blues and fusion player. However, before I got on stage I had to drink. I became an alcoholic.It cost me my family and my job playing professionally. Propranolol doesn't help.





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I have had tremors since 7th grade. It all started in my hands moved to my legs, hands and head. Now I'm 22 and its mostly tremors from my head. My head moves constantly. I need to hold my head when I speak with someone or lay my head on my hand. Some days, it seems better than others. I don't drink caffeine because it becomes way worst. I have learnt to deal with it even thought I would love to cure it. I have a very serious job that requires me to deal with stressful situation in the social work field. I bought a house last year, have a long term boyfriend and a step son. My life seems well put together but because of my tremors I feel like I cant be fully happy even thought I am. I never talked to my family doctor about it because I am scared. Every time I go to the doctor my blood pressure is really high because I get really anxious. I live in a small town and feel like everyone would know about it. My family or friends don't know about it. I recently went for a teeth cleaning and I told my hygienist because my head was shaking sometimes. I feel like I cant get married or have children because of it and I would LOVE to have a child NOW. I know that I can take care of a child but the thought of having to hide my tremors is making me anxious. My neck is always stiff. When I wake up in the morning I feel more shaky. Sometimes during the night I wake up and my head shakes. I get really anxious in social situations I always need to hold my head. My friends don't know about this. I am viewed has a really funny and social person. I have a lot of friends. I am not sure how I managed to survive high school and college but I did. I am not sure how I managed to get a very good job with a high salary. I am not sure how I managed to find the love of my life and buy a house together but I did. I am not sure how I survive everyday but I do. I read about beta blockers but not sure if it would work with me?. I hope that one day...there will be a cure for this...the day there will be a cure is the day I will feel freedom for the first time in my life.





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I feel the same way... that the day there is a cure for tremor, will be the first time I will know what it feels like to be free from embarrassment. I manage living with tremor but it is hard work, mainly because I'm always trying to second guess situations so I can work around my tremor, in turn this probably causes me greater anxiety. It's all a vicious cycle. I wish I could stop caring so much about what other people think. Recently I have separated from my partner of 10 years and I find myself wanting to meet someone new but I just don't know how it is going to happen because I am so anxious and self conscious about having a tremor I really believe most people would run a mile. I'm 39 and I was born with ET, it runs in my family on my dad's side but other than my dad, who I am not in contact with, I don't know anybody else with a tremor. I would really like to meat others who have ET but I don't know how to go about it. I am a member of the national tremor foundation but it is not a very busy forum at all. Does anybody have any ideas?





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It looks like no one else has asked this question, so please fill in the rest of your details below.





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