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Conditions

Crohn’s Disease

MRI scan showing Crohn's disease

Crohn’s disease is an internal condition that can affect a sufferer externally. It occurs when the wall of the affected part of the gut becomes inflamed and the inflammation causes one or more of the following symptoms: pain, ulcers, diarrhoea, anaemia, anal fissures and rectal bleeding, loss of weight, loss of appetite, and feeling lethargic. Symptoms vary depending on the part of the gut affected and there are many options for treating this chronic, episodic, inflammatory bowel disease, although there is no known drug-based or surgical cure for it. The exact cause of Crohn’s Disease is not known, but it’s thought there may be a genetic link, as there’s some evidence that it runs in families (1 in 10 people with the condition have a close relative who also has it). Crohn’s Disease is more common in smokers and in women who use the combined oral contraceptive pill..

What the Men in White Coats Say

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hello, in 2004 my old doctor sent me to the hospital for some tests, as he said i could have IBS.

I had one test done, a barium enima, and while i was at the hospital the nurse said i'd got crohns disease.

But later on when i went to see my old doctor he told me i'd got ibs.

he fobbed me off by giving me some tablets & said there was no more he could do about it.

that was 5 years ago, i'm still on the same pills he prescribed me:
Colpermin, Buscopan & Mebeverine.

I moved house and found a new doctor, & when i went to see her, she asked me how my IBS was, and i told her i'd got crohns,
she said to me, "oh? down here it say's IBS" (on my files on the computer)

I've had gut problems all my life, and i'm on the small side to say the least..
(which is caused by crohns, but the doctors here havent figured that out yet :(

when i was a child, my parents were forever taking me to the doctors with an upset stomach, & looking back my parents say, it was due to crohns, but they didnt know that at the time, because even my childhood doctor never sent me for tests.. he just gave me medicen to shut me up.

anyway my present doctors, i see a different one each time :/

I tell them that my tablets dont help me much, and all they say is take more buscopan tablets a day, i do & it makes me feel sick.

this has been going on since 2008,

i also say that i keep getting a pain in my lower right side, even now i've got a dull ache there, it feels like my guts are rock hard in one spot.

and all she said was, oh? well if they still hurt you in acouple of months time come back and see me.

i do and she tells me to take more buscopan tablets..gah!

so i've given up going to see the local doctors around here, they dont seem to want to listen to me.

so i thought i'd try and get help online, as there must be some kind soul who can tell me what to do next & who to see? :)

At the moment i weight 6 stone if i'm lucky, i'm 27 years old, very under weight for my hight which is 5.7inches tall..

I eat but never seem to put on any weight, my lower right side aches and i feel tired most of the time, and i go through periods of sleeping from 4am – 5pm.

i just cant help it and i dont know why?

i dont know if i should go back to the doctors and try and get them to help me or what?.

even when i said, my breasts are non exsistant and i'm 27! the doctor just said theres nothing we can do,

but i said, oh? and how about all these transexuals that get hormones to make them have bigger breasts?

she just said, thats not possible for you and it'd affect you funny, she didnt say in what way tho? :/

i cant even wear a nice top, its horried.
so i gave up on that.

and stopped going to see the doctors, so thats why i'm here to ask advice.

hope someone can help me, thanks.

i was diagnosed with crohns 3 years ago. twice i have spend long periods in the hospital going thru various tests. the scopes, ive had 3, are an awful humiliating experience but they have to be done to see the severity of the case. i was panned off on asacol for 2 years and it never did anytrhing for me, they just kept upping the dose. also i was prescribed mebevrine tabs, if u get offered them, dont bother. they are ment to stop cramping, but youd feel better taking polos!!

im due to go for another scope soon as i am not under control and have lost half a stone in the last 6 weeks. the are offering me azothiprine, with requires regular blood tests. or to go back on steroids.
when i was in hospital the steroids helped but they made my life hell. i had alot of water retention and i felt constantly tired and sick. the docs never listen, its a painful disease when you are having a flair up.

i was 17 when i plucked up the courage to find out why i had blood when i had a bowel movement, feeling tired and extreamly sore in the lower abdomen.
life isnt easy but you really need to try and push though. otherwise u let the disease control u.

my personal trigger foods are spicy foods, mayo and pizza hut pizza, strangly enough. its worth taking a food diary to identify triggers. though i have been told mine could be stress related and sleep related.

take the time to research. dont scare yourself with horror stories on the web

I have been experiencing pain all round my abdomen,my back and my hips a lot lately,I feel so drained and tired that my relationship with my boyfriend is fizzing out.
I am very irregular when it comes to bowel movements, usually once every 7-10 days, it is uncomfortable and there is dark blood in my stools.
My stomach is tender to touch and sometimes on bad days my hips lock.
I was admitted to hospital twice in the summer, both for "suspected ovulation pain"
and i have been to the doctors 3 times in one month, despite being prescribed senna tablets,lactulose and fybogel, my ailment always seems to win.
I lost my job through my health,I have just started college but am missing days already.
PLease help me,I am 16 and just want to live my life?

Hi, Im 22 and for about 7years iv suffered with very bad stomache pains to the point i cant move as it gets that painful at the time i wasnt having periods and i was given a laparoscopy and although the doctors couldnt find much said i had pcos and that i wouldnt have kids without IVF, about 7months later i fell pregnant naturally and the stomache pains went away, since having my daughter in sept 09 they have come back and there getting worse im having trouble picking her up cuddling her as the pain gets so bad, iv also had problems with my bowels im constantly needing to go to the toilet and its always loose iv came close to soiling myself several times, my doctors are telling me the pain is just an over active bowel and that the pain is all in my head and i need counselling im really not happy with this and its getting me down now as i feel i just dont no what to do next, PLEASE PLEASE HELP ME!!

Hello
Just to give you some hope – I am 43 and was diagnoised with Crohns 21 years ago – I was operated on very quickly and have had no further Crohns outbreaks. I have lived my life fully and have been blessed with 2 beautiful children (now aged 6 and 9). Go out there live your life and remember there is always someone worse off than you!!!

I have been suffering from very bad stomach pains for about a month and a half resulting in diarrea and constipation! it has been keeping me awake at night and i cannot seem to be able to treat the pain! i am at the moment being treated for irritable bowel syndrome but i wasnt sure if i had chrons disease or not as my grandma had it and alot of other members of my family do.
Is there anyway i could self diagnose this problem without having to go for intrusive tests? i also have a very tender stomach! it is lower down towars where my bowels are situated.

i'm 17 and i have just been recently diagnosed with crohn's. i just want to say to everyone out there please dont leave it! i knew i wasnt well for about a year or so (feeling very down and tired) and when i had a bad case of diorrhea, i only mentioned something when i started having crippling stomache pains. We then thought it might be a good idea to see a doctor, i was in severe pain for two and a half weeks before i was finally admitted into hospital. By then i wasnt eating, was exhausted, badly aenemic and had lost a stone in weight. It took 10 days in hospital before i was well enough to walk out of the door. since then i have had a colonoscopy (bowel prep NOT PLEASANT) a CT scan, an MRI scan, a fischa, fistula, an abscess and i am on several drugs. I had to stop everything i was doing: quite college, stopped socialising,i just stayed in bed because i was so low. I still cant live my normal life yet, although things are looking brighter.
Im just warning people now, if you think even the smallest thing is wrong DONT LEAVE IT; the doctors have seen everything, i wish i had the guts to go earlier and my whole perspective has changed, i pratically live at the doctors now and it doesnt bother me one bit!!!

I Have Chrones Which I've Had Since Age Of 14 And Im Now 17! I Was Told Having Children Was Going To Be Very Hard As The Drugs You Have To Take e.c.t.

I Am Now Pregnant And Needed No Help. I Was Wondering Will I Lead A Normal Pregency? Just I Am Very Concerned!

my husband has problems but I have difficulty persuading him to get the doctors!! Every morning he goes to the toilet and has loose bowel movements – up to 5 times before he leaves the house (in an hour) and the first couple of times he says clumps of blood come out instead of poo. He was diagnosed as having a stomach ulcer yrs ago so avoids spicy foods, but that hasn't bothered him for some time now (no pain) he also smokes and drinks and lately he is eating less food than normal – not sure if it because he doesn't want to be on the loo so much or loss of appetite!!! He knows he should go to the doctors but he doesn't like ours due to them being very slow to pick up on things (nearly 3 yrs to diagnose my endometriosis). Any ideas what this could be? he thinks maybe piles – i'm not too sure.

I'm 19 yrs old & I was diagnosed with chron's december last year, & its under control now becuz im on asacol tablets, & im very lucky because nothing seems to be affecting my stomach at the minute. But no1 in my family has got any history of chrons, but my dad did have bowel cancer a few years ago, is it likely that i will also get bowel cancer now?




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