Conditions
Crohn’s Disease
Crohn’s disease is an internal condition that can affect a sufferer externally. It occurs when the wall of the affected part of the gut becomes inflamed and the inflammation causes one or more of the following symptoms: pain, ulcers, diarrhoea, anaemia, anal fissures and rectal bleeding, loss of weight, loss of appetite, and feeling lethargic. Symptoms vary depending on the part of the gut affected and there are many options for treating this chronic, episodic, inflammatory bowel disease, although there is no known drug-based or surgical cure for it. The exact cause of Crohn’s Disease is not known, but it’s thought there may be a genetic link, as there’s some evidence that it runs in families (1 in 10 people with the condition have a close relative who also has it). Crohn’s Disease is more common in smokers and in women who use the combined oral contraceptive pill..
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Everytime I taken my period's I bled from front and back passage. I have had serveral colonascopies done which has showed up mild oedema in the sigmoid colon I have also had a larascopy done as well and nothing has showed up. My periods are a normal 28 day cycle give a day before / after. The bleeding from the back passage only happens during my period. I do get alot of pain in between my legs when I take my period and it makes it sore to walk at times as the pain is inbearable. please help.. c
my name is chantal, i wrote to you earlier. I have got chron's and was on imfleximab for a few years. three years ago i was having painful inflamed scalp, with puss coming out of it, was losing a lot of hair, the skin on my scalp was just peeling and falling with my hair. i was in so much burning pain. i had almost no hair left.I saw the dermatologist so many time but everything they gave me did not help. They did not know for sure if it was cause by the imfleximab or my low immune system. But it wasn't and infection that could be treated with antibiotics,because they did not work. It was not contagious aswell wich was a relief to hear. Last time i so the dermatologist was 2 years ago and what he said to me was, "after the swap the we did on your scalp,we noticed the your hair folliculs are getting inflamed and that is what is causing the problem , but we really do not know what to give you at the moment that we haven't gave you already,and that will make it ok. me and my team are going look into you case and give you a call any time we have a solution that will help you". Now this was over two years ago,I had never been in so much tears in a while.I came home and started to try everithing on it, eventually i discovered a product call Dr miracle. After a couple of days the puss and the scalp peeling stoped and evetually my hair stared growing but more like baby hair and i eventually stoped wearing wigs.my hair is fine now, although it is not the way it was before it started falling but i'm so happy it's over, it is improving as time goes. I have been having boils on my legs and tighs, they have left me very awfull looking black spots. they keep coming all the time, Gp and consultants have not help. can't fine anything that will clear the black spot. i;ve got more that 100s of them. can' wear anything short, i hate my skin. Everytime i look at them, i can't believe it is a human been skin.I wishe that i could look and feel good,that ther was something that i could do to clear the spot and stop the boils. I appreciate my life now and i thank GOD for it every day, i just get deppressed so often, but try not to stress to much, i try to symplify things if i can help it. Three months ago i was changed to a new drug named HUMIRA, it is going on ok, i do not want to think or wonder about what might come next,i try to be happy every day and eat healthy. They are so many things that i did not think i could do before,that i am doing now. Chron's and depression are very bad combinations
hi, i to have chronic crohns disease, i was diagnosed december 08, and no mater how much tratmen iv had im still not in remision, i am also had a lot of meicins, from steriod to imune supresents, im also on imflixmab, and will be for the next year and a half and the least. im in constent danger of gettin a stomma which would be permant. my hair is falling out to, and my scalp is rather crusty, i to get really depresed, and i HATE eating for the fact that i get so ill after, my meds are getting changed 24/7, its good to know im not the only one :)
Hi my name is chantal,i'm so glad to know that i'm not alone in this. i've had chron's for the past 8 years and i'm now 32 years old.when the symptoms for me were constant use of toilet and actually taught that i had heameroid at least that is what my gp was telling me. i was prescribed creams upon creams to apply on to my back passage. After months of pain, i had loss so much weight that i went from 65kg to 55kg, i was so thin, every time i saw food, i felt sick, i felt like needing the toilet, but yet again when i went almost nothing came out. i was so weak by the days, was sore and had fissula, was in constant pain, couldn't seat or stand for 5 min. leaving was turture for me. the wors part is that no body understood me, my partner did not understand the pain i was going through, i was so withdrawn, depresses, in constant tears, didn't go out, was vertually a prisonner to this desease. then the arthritis started aswell, boy i felt like i had lived my life already, i thought that this was it, that maybe i had just months to leave. What was comming next! After test in hospital, i was dignosed with chron's and arthritis and operated on after losing a lot of blood. I was given a bag and put on imfleximab. It changed my life. I took me a couple of years to get use to the bag, to accept that this was my life from now on. Eventually i got through my depression with the help of a very good friend.
I have had Crohns disease since I was 26 years old and I am now 67 years old. I had one half of my intestine removed in 1972 and alhough it didnt cure me, (I have flare ups and real bad times when I am in an awful lot of pain) its not continuous on a day to day basis. I was one of the lucky ones I have been able to have a very good quality of life with the support of a very loving and understanding family. Its not been easy at times but there again life in general isnt an easy ride for everyone. So dont let it take over your life, enjoy it to the full if you can.
my son is 8 years old and has been told he has early ibd but they don't no what lable to give him they had him on malzaine then steroids now on salsafzine and steroids he is also adhd and is finding it very hard to deal with. he is always in pain on the toliet and losing weight although the steroids work for abit when he comes to the end of the treatment he gets really bad again. we are trying to help him throught this but he has so much medication he is like a walking khemist and he hate taking them sometimes he refuses as a mum it kills me to see him go through this,the doctors dont really seem to be trying to get to the bottom as they just keep putting him on steroids i no there are people who have it worse but am worried for him and where it may lead
Hi Beverlay! not sure if this will help but i was diagnosed when i was 10 and im now 19 and happily enjoying the univercity life! when i was first diagnosed with crohns i made to down steriods like there was no tomorrow!! dr. was very old fashioned. I had teh same problem,they had to put me on a really high dose for it to work slightly, got all the side affects, puffed up like a muffin, grew a lovly little tash! then when they tried to wheen me off them the crohns hit back hard. I ended up changing doctor who is based in london and he put me on infleximab. after trying out many of the other drugs which have worked for other patients. so you should ask about other ones, there are tones out there!! there was even one that gave me a tan and my eyebrows ginger haha! also, i joined NACC which helped alot, talking to other kids my age about it and who understand :) not sure if this will help but worth a shot eh? hope your son feels better very very soon!!!
I am 19 and have had Crohns for about 6 years now. Steroids never worked for me, and then I had a stoma created, which was followed by a pouch operation. Since then I have had nothing but trouble, and have been recently put on infliximab. So far it's not really ahd the greatest affects on me, but then again it is early days! This disease has controlled my life since i was diagnosed, dont let it!
i have had crohn's now for nearly 5 years and was diagnosed as having ulcerative colitis first but the doctors changed their minds after another colonoscopy. i am 16 (nearly 17) and after quite a while of being ill, i am now in good health and getting on with my life after a major shock in my very early teens. it wasn't easy to cope with at first but i got over it and life couldn't be any more normal. Why be hide away,don't let it rule your life, you rule it!
hi. i am a nearly 40 year old female who's had crohns disease for the last nine years.it took the doctors ages to diagnose it...for 4 months they kept sending me home with diarrhoea tablets!! i changed doctor and she sent me straight to hospital from there i had all the tests which i was then confirmed with crohns.i've only had 2 bad episodes since then( touch wood) the pentasa seems to work for me most of the time but i'm intrigued about the Imfliximab,and wonder if that would help me more! mornings are the worst still but i'm used to it now!! its embarassing when starting a new relationship though!! good luck to all my fellow suffer's
Hi I am 29 and was recently diagnosed with having chron's i can totaly Relate to everything that your all saying. does anybody know if Chron's can be controlled by Diet at all? I was only diagnosed a week ago so Chron's is a very new thing And As stupid as this may sound I actualy find it quite scary at times to. I wont leave the house if i don't know where all the public loos are as I am scared that I will have an accident, unless i have someone with me. I am find that Chron's is such a dibilitating Condition. and I sometimes get very depressed with it because If you plan to do some thing like go out with yuor mates you end up cancelling at the last moment because your chron's can be bad. i hate having Chron's it's so crap because it takes over your whole life and changes it and it doesn't change it for the better eaither.
i've had crohn's since i was 14 and im now 22. when i was 15 i had to have a Bag and i thought my world was ending i told my folks that no one would love me and im ugly.. when i was 19 i meet my fiance and i thought my would was the best he poposed on my 20th birthday and i couldn;t be happyer then i got really ill and was in hospital i thought he would leave me cause he has never seen me really ill but he never and i went for another op to remove the recktom so i wouldnt be able to have my bag reversed, again i thought my wourd was going to end but i spent my 21st in hospital i spent 6 months in hospital. Now im 22 and under going a new trail treatment for crohn's as i have fell ill again they told me that its the worst cause they have seen i even have crohn's of the peraneal and skin and eyes but i still he myself as having a posative mind of it all...
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