I have endo and have had it since i was 13 years old. I've had surgery but found it hasn't worked. I have been given evey medication you can think of but nothing seemed to work. I had to take days off from school..college and work due to the pain. I suffered from the worst pain u can imagine but now at 25 have found if i dont eat wheat…meat…diary or things with catheine in seems to really help. My pains have gone when my period comes and can take normal pain killers for the twinges….yes twinges…no being sick…no curling up in bed…no blood clots…no pain. My period has regulated to 21 days when before it was 31 to 35 days. Please look it up on the internet as i feel this has really helped me.

hey evreyone! i started my periods wen i was just 8 years old thy were fine and normal till i hit 13 years then that was wen everything started to go rong for me. i never had enough corrage to go to the doctors as i was scarred of wat tests they mite do to me wen i was younger so i just had to suffer with it. it affected my school years so much as wen i had a period i had to have the day off school most of the time i cudnt even get out of bed as thy were so heavy and painfull. i finally plukd up the corrage to go see the doctor wen i was about 16 and after loads of test thy told me i had pollycystic ovary syndrome and tht the only time it will bother me is wen i want to have children and gave me sum tablets for it i dint have a clue wat it was as the doctor dint tell me anything so i had to look it up myself. i left it about 7 months but it all seem to get worse as i was having regular periods i had the horific pain there every single day it was rele very hard because nobody i new was going thru this all my friends wer all going out and i was always to poorly to go i was just so sick and tired of everything and went back to the doctors and told them that i still had all the pain so they just put me on sum stronger painkillers i went back several times because the pain was not goin away and they just tried me on different painkillers every time. i went back to the doctors and thy told me i shud not be in alot of pain with pcso and sed that thy think i mite have endrometriosis and if i had then i wud probably never have children of my own this was another strange word i had never herd of again so just lookd it up my self again. i had all the tests and thy sed every thing came back normal so i did not have endrometriosis i was very pleased but thn i was more worrid because wer was all this pain cumin from if it wasnt tht the doctor just told me i had to get on with it soi tried for another few months and it got to the point were i was so depressed other people my age were all out enjoyin them selfs n i was stuck in with my hotwater bottle and dosed up on painkillers that made me feel sick dizzy and tired thy were as good as my weekends got. i was so down and went back to the doctors again and told them i could not live like this anymore i was in so much pain all of the time i was having alot of time off work because of it and she told me that she did not no wat else ae can do for me and told me tht there was nothing for me so i demanded to see sum one else because i new tht sumthing wasnt rite with my tummy i got sent to see a gyni and the first time i saw him he told me his was syre tht i had endrometriosis so i had a lacporoscopy and it turns out i have got endro, pcso plus my bowls was also stuck to my uterus. it just shows you how much doctors can fob you off well im still recoverin from my little op and just praying that i helps with alll the pain and the periods. just hope it hasnt affectd the chance of one day having children too fingers crossed….

i found it so hard going thru this on my own and just hope tht in a few years to come there will be a cure for this.. nobody seems to understand wat we actually do go thru and how bad the pain actually is i just got told tht it was period pain and to stop being a baby about it coz everyone goes thru it .. yer rite lol …
well good luck evryone xx

Hi , I am in late 30's and I have severe Endometriosis, my gynea has suggested removing my ovaries, but a my mother suffers from Osteoporosis (arthritus) ,and I would like to have children …I have been recieving the strongest dose of IVF treatment , but been getting bad side effects so it is a slow precess – meanwhile my pains are getting worse and I am frightened that it may get to a stage of my organs getting fused together . I am seeing the ivf doctor who is trying to keep my ovaries so I can have children and my gynea doctor who wants hem out as it is a severe case – what do i do?

hello im 22, i started my periods when i was 13 and have been in agony from day one, pain in my bum, severe stomach cramps, HEAVY bleeding, unable to get out of bed for the 1st few days, it got to the point where my life was so disrupted, time off school, then college then work, my work are not supportive and are fed up of what they see as excuses, no one else understands unless they have endo. i get people tell me, everyone has periods that makes me sooo mad. me and my partner struggle to have sex as i find it really painful, my mum, nan and sister all have endo so my doctor was really good and sent me straight in to have scan and lapo, they found endo on my womb and rectum, ive tried all types of contraseption nothing seems to help, my sister had a baby, it took 3 years for her to get preganant, they say that when your pregnant it gives your body time to heal, however hers didnt she is going in for surgergy for laser removal, i just wish this condition was discussed more and people realised how hard living with endo is, good luck girls x

Hi im claire i am 23yrs old. I started my periods at 13, it was awful the pain i went through every month was unbearable. My periods were irregular,heavy and very painful. After having my daughter 5yrs ago my periods got worse i would be in pain before and after my period. They were more irregular,and sex was painful only in some positions. In the end i couldnt even have sex, as my partner would be scared of hurting me and i didnt enjoy sex at all. I went to doctors and was booked in for a scan for poly cystic ovaries. That came back clear, so i left it at that, doctor never said anything. A year later i was still in pain, I went back and thats when my female doctor mentioned Endometriosis. I had laporscopy done, and i did have it. A small spot of old endo was found at last. I had a miscarrage about 2yrs ago, i am trying for a baby now i hope it hasn t affected my fertility too much. I have got an appointment with my consultant in 3 weeks. Im also feeling pain in my bum now. I get alot of tummy problems aswell, bloating,gurgley noises,wind and bowel movement also feeling tired alot of the time. So anyone reading this and it sounds the same get checked out. I dont think its known that well and young teenage girls need to know more about it.

hey im 18 .. i started my periods wen i was just 9 years and thy wer normal up untill i hit 13 me and my cuzin wer playin about an she kiked me in my tummy which caused me to bleed and from then everything started to go wrong for me i neva derd to go to the doctors about my problems because i was alsways embarased thinking of wat thy might do so for years i just tried to suffer in silece but my periods only got worse and more irregular to the point were i dint have one for 11 months but still got all the symptoms and rele unberable pain. it affected my life so much through my school years as most of the time i could not get out of bed as i had that much pain. then wen i was about 15 i started havin like epaletic fits this went on for about 2 weeks and i endend up in hospital so many times but thy could'nt explain to me wat it was causing these i was in more pain than ever before and ended up having about 3 months off school and left me dreding how painful the next day would be but now thy think it was hormones mixed up .. my mums been there for me alot but never rele understood wat was up with me and just sed that every one gets painful periods and i new that but mine wer not normal andi new something was wrong so wen i was about 16 i finally went to the doctor and tried to explain wat was wrong but they jus fobbed me of with some pain killers to take wen i was on a period i left it another cuple off months and i was just getting worse so i went back to my doctors and sed it is not normal and i crnt keep puttin up with this so thy did some blood tests and send me for an ultrersound and it came back tht i had pollycystic overy syndrome something i had never herd off before thy dint explain anything to me rele just told me it would only affectme if i wanted children and that it would be very hard or unlikely to concive also put me on the pill and gave me some more painkillers and told me it will control it now but it never got any easyer just more and more worse as time went on i kept going bak but thy just tried me on different pain killers but they wer making me depressed on making me put alot of weight on too and its only been in the last cuple of months that my fiance was getting mad because of being fobbed off all the time so he came to the doctors with me and told them that i crnt go on like this how much pain i was in and that thy needed to do more about it that is wen the doctor told me about endrmetriosis and sent me for more scans but nothung came back so i told her theres something wrong with me and i need to o wat it is the doctor told me there was nothing more she could do and sent me to a gyne wen i went to see him i told him wat i was going through and he sed he was alomst 100% that it was endro and he wanted me to have a laparoscopy so he could have a beta look inside so wen i woke up from having this op i found out that i have a bad case of endrometriosis and my bowl was attachd to my uterus thy sed thy have burned away as muchas thy can and cut my bowl away from the uterus. im still recovery from this and praying to god i have rid of all my problems so i can start to enjoy me life now and not have to worry about the next day of server pain it will be so werid not to have pain there every day im jus looking forward to getting beta and back on my feet to see if it has worked out for me . i tell ya people just dnt understand wat we go through on a daily basis and how hard it is to jus go to work and get through the day smilein … i jus hope in the future i will be able to have childeren of my own and this hasent affected the chance to for me ..

good luck to evry one and i jus hope weall get sorted out in the end jodi xx

I was diagnosed at 16 years old and told it meant I would never have children.That was from a female doctor, nice isn't it. I was depressed for so long after. Then met my husband who said we could adopt. We then immigrated to Austrlia and saw a fertility specialist who took it out and told me now is the time to fall pregnant and that would cure it. About 4 months later I was pregnant and now 6 years later my endometriosis has not returned. No pain during sex or when having my period. Don't give up hope.
God Bless,
Tarryn

Endometriosis has been a blessing for me. Sounds crazy huh? Well, it has brought me the most horrifying pain of my life from the time of 12. I have tried so many things including surgery but allopathic medicine has never been able to alleviate the pain. Fortunately, I've had an open mind and started reading about natropathic treatment, chinese medicine, and nutritional therapy. I've changed my diet, take herbs (chinese) and receive acupuncture – its been a great lifestyle change that has affected other areas of my health. Without endometriosis, I would have never made this transistion.

hey since starting my period wen i was 12 now 21 they have been fine up until a year or so ago..i was brought into hospital for severe abdomonal pain and doctors thinking it was my appendix but wasnt sure so sent me home wen i felt better.after comin out of hospital the first time i thought that would have bein the end but i was takin in again on several occasions stil they couldn tel me what was wrong.i then was goin to the doctor for a chest infection and decided to mention it to him,he was a stand in and was an australian citizin an it was him who diagonsed me it endomertriosis…i think i have more of a severe case as im crippled with pain every two weeks n cant move walk n hav to lie in bed for 3-4 days and its really gettin me depressed and dont no hoe to deal with it please help

Hi everyone, so sorry to disappont u all. But i'm 33. have been suffering from severe period pains and heavy bleeding since age 12. After an unsuccesful IVF treatment in my 20s i was diagnosed with endo (many years of heavy period and pain and visiting doctors). Had it removed but came back again after 6 months with same heavy pain.
2 years ago aother IVF, got pregnant but had miscarriage after 6 weeks. Period pains are still bad, but since miscarriage not many bloodclots and always on time compare to before when i never knew when i get my period.
Anyway, what i'm trying to say is that no one cares about this condition and they not doing anything to find a cure. No one believes us what we go through. I've been married for 13 years and my hubby still doesn't believe me. Because of all this i can't get pregnant(been trying for 10 years) and now going to adopt.
Good luck girls and pray for a cure.

Eva
XXX