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Conditions

Intersex

Intersex

Being intersex is when a person is born with both male and female characteristics, and affects around 1 in 2000 people each year. This condition is not always recognised at birth, with some people experiencing problems when they reach puberty by developing gender characteristics outside their labelled sex. Traditionally, doctors and parents have decided on behalf of the baby which gender they will fit in to, but recent debate has brought forward the opinion that children should be allowed to grow up happily with both sexual characteristics before deciding for themselves. At birth doctors would perform surgery to leave the child with wholly male or female genital characteristics so that the child can grow as being either male or female. Sufferers who decide that they have either been labelled as being the wrong gender, or choose their own gender identity themselves later on in life can also receive surgery and/or hormone treatment to develop the gender characteristics they wish.

This condition is often linked to Androgen Insensitivy Syndrome where a person is born genetically male but whose genitals have some form of female appearance. This is due to a lack of sensitivity to androgen which helps to develop the male reproductive organs when a child is in the womb. Both these conditions are what doctors call medically sex development disorders and are different from conditions such as gender dysphoria, where a person feels that they are trapped inside a body with the wrong sex.

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Hi, I have ks47xxy. I was born a male but like others have said have female breats and nipples no hair on my body almost like it that way elongated bones no adams apple have normal sized penis ed but am taking anti fungal creams and complimentary therapies for this and have been using such for decades have womens hips smooth buttacks and hole like females have in backside but a male face was born in 1949 and wouldn't change any characteristic about for the world. My main hormone is estrogen but get testosterone or most of it in a jag every 3 months, it used to be once a month for 47 years. Anybody else like me, love to hear from you.





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What options are there for seeking help for intersex an d ais





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well i came out as being a woman in a if it body and im not joking i have breasts female hips cant grow hair on my body like normal men but i have male genitals i have large hands like a man and i have very large feet but im only 5"9 ive been so scared of what my boby telling me but i know im a woman anyone the same





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I was watching the episode on Wakestock, but was so sleepy I did not make a mental note of the name of the artist who was proud to share their experience of intersex. I was very inspired, but would be interested in their work and possibly get in contact. There was also the comment made that they wished for an opportunity to express more femininity-I would love to have a discussion about period re-enactment from another perspective as many people express both the masculine and feminine qualities through the historical context creating an interesting discussion of what actually is masculine or feminine in the modern context. It is a very interesting topic for discussion. I personally am non sexual, which is also misunderstood and not within mainstream society or cultural knowledge, so there is the ultimate goal of being accepted for who one is as opposed to a gender specific role expected by culture and society in order to fit in. It opens up all sorts of possibilities and opportunities for artistic expression.





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I was born with androgen insensitivity. Doctors thought it'd be easier for me to be put on hormone therapy and experience multiple genital surgeries than to let me live as a man with a smaller than average penis. I never identified as a female and finally found out about my AIS at 19. I actually had sue hospitals for my medical records because they refused to release them to me. Took 2 years and $12,000 just found out about my own health. I've been living as the man I was born as for over a decade now. I can't afford reassignment surgery and without it, I can't legally change my gender to male. Ironic, isn't it? Utterly ridiculous that people have to go through genital surgery to be accepted by society.





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I'm going through the same problem. It's horrible, I tell ya. I even have severe medical problems down there and they still won't do the surgery. Figures..

As a single word to describe everybody with disorders of sex development intersex is as bad as hermaphrodite. It just doesn't all the individual conditions justice. Some people might want to see their DSD as making them not male or female, but that really ought to be up to the individual concerned. Oh I'm treated for Klinefelter's syndrome, which I wasn't born with, I developed it sometime around 14. If those symptoms of =disease were to be included as intersex as well, getting males and their families better educated about it will be even harder, and people pretending they have it will increase. Best call conditions by the name they are, not some generic, imprecise term.





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I grew up as a female (with external organs) well my mom said i was a girl but dad on the other side said im a boy.they raised me as a girl cause i have a twin sister.i noticed that i was different when i was 15 cause my twin was getting her period and had boobs.i was always in my room,didnt have friends and i didnt want any1 to see me naked.things started to change last year when i turned 18,i had my first wet dream as a boy though i never wanted to be one but Dad was so happy for me.well i pee with a penis but i have a vagina which doesnt work.eventually i learned that i must accept who i am and believe in my self.now they refer me as a boy .im in uj now studing medicine and im happy.my only problem is getting a gf,im very shy and i dont think the will be someone who wont judge me for what god made me.Growing up wasnt easy but im glad my family was with me every step of my childhood.





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My vigina has a big clit,well to me it seems to big.it sticks out when im turnd on and doesnt when im not.it stops me sleeping with people cuz im scared ov the comments they make.wat can i do? X





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Some men as myself are turned on by big clits. I myself consider the bigger the clit the more turned on I get. I would love to have a women with a huge clit, be proud of how you are and your sexuality.

I've considered writing a book about this. It makes for very complex situations.





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I was born in 1947 and these things were a deadly secret, I was never told anything as a child though as I grew I noticed differences in my genitals. I know that I have a hole were my penis had been but no cliteris I have sacks for testicals and I can feel tinny testicles with tubes, my vagina is to far back and has a hole were I urinate.I have busts, in my head I feel neither male or female but I do prefer woman , I feel like a camp man who likes woman but in a strange body . My medical records have been lost over the years, my parents dead so I may never know why I'm like this.

Sounds like you could have a form of Androgen Insensitivity Syndrome AIS. This is not as rare as one may think, if you take into account all the forms it can present it self in. I personally believe I share a lesser form of this myself. In fact I also tend to think of myself as Asexual in many ways. I would also like to point out that the full spectrum of intersex conditions comprise much more than 1 in every 2000 births. In fact that figure could be more like 1-2% and even up to 4-5% by some accounts. The 1 in 2000 number isn't even in the ball park. Again keep in mind these conditions will present themselves differently from person to person. Also it seems to show up in males more often. There are so theories as to why this is this way but that is beyond the scope of this letter. I have started to write a great deal on this subject but for now only for myself. I do belong to a number of intersex groups and try to help those in need. Suicide rates are very high for those who present as one gender and feel the need to transition to the other gender. The one thing everyone has to remember is that transgender confusion is VERY common in the world. The cause is not as important as the care a person needs to deal with phycological pain people go though. This is a biological condition that often needs phycological care and even surgery for a few. Do what you need to do to survive.

I was born with an undescended testis that surgically brought into proper position when I was ten years old. Even though I married and after many years of marriage was able to have children I never looked at myself as a true male. This testis never grew much more than a couple of centimeters most of my life and in fact the other testis never developed to half the size of a normal testis. I was in my early forties when one day I noticed the undescended testis started to grow very rapidly. I rush to the doctor and after a lot of faults starts it was discovered I had testicular cancer. A Alphafeto protein test showed my levels where at 10000. Surgery to remove the testis showed it was in fact an ovary in addition a separate teratoma tumor was attached. After four months of chemotherapy I had surgery at the Mayo Clinic for what was discovered to be another huge teratoma. This was 14.5x8.5cm and had arms, legs, eyes ect. It was at the Mayo that they told me for the first time that I had Ovarian cancer. Now this is the reason I felt I as in deed a women my whole life and in fact I felt like I was pregnant from my early twenties. I'm I Intersex? Or is this one of those medical unknowns? While I look male from the outside I clearly have few male characteristic. Please put this into perspective for me. I've seen phycologists and they tell me I have Gender Identity Disorder but I feel I have an Intersex condition. All in all I live a very happy life and have been married for 38 years and when I try to describe myself one word it would be "eclectic" I was tested for AIS and it came negative but I still could be PAIS no additional testing was done for this. Dave





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I have almost died several times from ovarian cancer treatments for my condition. But the emotional stress of growing up in a gender non-conforming body was by far harder to endure. Maybe I should seek answers from doctors on the TV show? Living here in the states has not supplied me with access to this TV show on a regular basis. But I do find the few times I've seen it to be very well done. The sad part about my life is I love my spouse very much but she could not embrace me as a women. Even though she has been right beside one for 40 years. It is amazing how a few millimeters of flesh can disguise a soul. We intersex/transgender people become polished actors when hiding. My real desire would be to show the world people like me live among you everyday. I share this world with you all and I am not a freak of nature. I am just another variation of what it means to be human. This has nothing to do with good or evil or anything of that nature, it is about how my flesh is perceived by others and not about the true makeup of my soul.





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