I am 51 years old and have suffered from an itch down below for 21 years. I went to hospital about 10 years ago as my husand was worried it was cancer. The doctor made me feel like a time waster so I never went back until 1 year ago. My GP sent me to hospital where they took a biospy a the hospital took photographs. It was very upsetting but at last I found out I had lichen schlorous. This is something that is terrible. Because of the lack of treatment I have permanent damage. Please talk about this subject so others can be helped.

Hi im 37 years old and was diagnosed with Lichen sclerosus 5 years ago. i found sex to be almost impossable and very painfull and i would bleed after so i went to the doctors but was told it was nothing to worry about and was given the usual cream to use but nothing seem to work it just got worse my body started to change.. my vulva began to thicken and fuse. i use dermovate and aqueus cream and but nothing seems to work for me. wearing clothes/underwear also makes it worse i live in constant discomfort.there is another side to having lichens (Depression)for me personaly i find having LS hard to cope with i dont feel like i can talk to anyone about this it's embarracing having to explane how my body has changed and the impact its had on my life..im almost house bound atm as wearing cloths only makes this worse.id give anything NOT to have this Disease and have my old life back

I have just been diagnosed with lichen sclerosis. I has appeared on one side of my vulva. It is white and was terrible itchy and sore, almost like a sensitive ulcer at times. Before, eventually, going to the doctor, several of whom did not recognise what it was, I had changed to a Simple brand soap when washing and this had alleviated the aggravating sensation. Of late it has caused no problems but when I occasionally take a look, it is still there…about to use the Epiderm cream again as prescribed.

i suffered from lichen plainus for years but didn't relise it could effect diffrent parts of the body now i know jut from my vist to this site what the marking on my body are,

Hi, I also suffer from lichen sclerosus – please cover it. In addition I have alopecia areata – both are auto immune conditions and both most unpleasant for a women – please cover it – sorry but I am not brave enough to go on your show.

Hi I have got lichen schlorous . I am 46 it took about 7 years for me to get a diagnosis to what i have . I have had it for about 25 years now and it is not nice at all I find that stress sets it off plus a numerous amount of other things like tight clothes , lycre , soaps and many other thing. Last year I had the coil fitted and now my insides are very red and sore I am going back to the hospital next week to see if they will remove the coil as i think this is irriated the desease. I have lost all the colour pigment between my legs and i would not wish this terrible thing on anybody its awful .

I am 55 year old male,several years ago i was diagnosed with lichen uareus.
It got quite severe on my lower limbs.
I did not like using steroid cream,so I decided to investigate the condition on the internet.
A woman in south africa said she had cured her condition by taking vitamin c and a herb called Rutin.I tried it and it cured mine.the dosage was 500mg of ester c, plus rutin,the condition has left a rusty looking scar, but no itching.

Iam a 58yrs female. Had a skin-tag removed it was partly discoloured with white, hence lichen schlorosus was the result. I have never heard of it until now and if i hadn'nt had the tag removed from down below i would still be carrying on regardless.All the bubbly bath stuff as been replaced with Aqueus creme and Demovate.There's no cure and at the mo it's mild and not to much discomfort.Taking each day as it comes.

hi i also have lichen planus, for about eighteen months was diognosed 2 months ago by a dental consultant, as i have it orally, also in every orafice, which can been quite embarrassing to scratch in public. the consultant gave me a steroid cream to use orally, its foul i also use it on my skin but since using it orally the ithing has got less on my skin i suppose it works from the inside out, but the itching has got worse in all the wet warm places, i so want to tear at my throat sometimes, waiting for results of swabs now.

hello i im 29 year old man and i have noticed white patches in a few different places of my body and some on my sides that look like lichen aureus not sure if it is its not hurting and have no real problem with it just doesnt look very nice my skin colour brown tanned ! have u any ideas thanks