I have Lichen Planus coming on for 4years. It started in my mouth just a white rough patch then covered most of the mouth,it was so bad it was checked for cancer.I used steriod mouth wash, it was painful to eat drink and clean teeth.I noticed my nails getting ridges then my back started to itch also the bottom of my legs and my feet, a few months back I could hardly walk with splits and cracks. In the last 2 months on the palms of my hands, the skin just dryed out crack split the itch it is unberable at times.I have had every treatment you can think of, some do mask it a bit.I had light treatment steroid creams but this just go on and on.Whether this is a kick back from chemo I had I do not know.

I was finally diagnosed with Lichen Sclerosis about 6 months ago, having been told for months that I had thrush! I was given some steroid cream which has completely cleared up the itching, however, a few weeks ago I noticed a white patch on my tongue (which gets whiter and bigger if I stretch my tongue!). I have been referred to a specialist but my doctor said occasionally L.S. can spread into the mouth (I have also read that sometimes L.S. of the mouth has been mistaken for Lichen Planus). Has anyone else had it spread to their mouth?

I first found a patch of this on the top of my right foot three years ago. It spread right across the top meaning I can't wear any strappy shoes without it being visible. Then it spread up across my ankle and shin, and eventually the same happened on the left leg. This site is the first thing to actually give me a name for the condition though - two GPs have not been able to formally diagnose it, although one did give me a mild steroid cream (it didn't seem to have any effect). So thank you Embarassing Bodies, you've taken a huge weight of my mind by naming my weird brown patches as something benign and safe!

i have a localised patch of Lichen Aureus on the left calf. I have seen a consultant Dermatologist he said not much can be done. Can you surgest any medication or treatment to help as I feel the patch is getting bigger and have another patch on my shine.HELP needed

I have Lichen Sclerosis, I was diagnosed about 2 years ago. I am told that it's quite rare in men, I guess I'm one of the unlucky ones. For me the only cure is circumcision, so I'm told but I think I will stick to the cream and suffer.....

I have has L.S. for the last 7 yrs. I was first trreated for hormonal problems that is until I read an article in the news paper about L.S. I then made a private appointment with a dermatolagist who then diagnosed L.S. I am now being treated with dermovate cream. I have not used any addatives to my bath water as this made matters worse. I have to wash my undies in unperfumed washing powder so that the perfume in the w. powder causes more itching. I have been treated with the dermatologist for the past 4yrs., but as long as the dermovate ointment is used on a regular basis I can cope. To be quite honest I am fed up as there is no help out there for sufferers. It is not a problem you can discuss openly with family or friends.as it is quite embarassing. I do see my consultant every 6mths. but its the same answer I get....there is not enough information regarding this condition.

i am 22 and have been told i have lichen planus. it started on my feet then spread to my arms and is now all over my body. Nobody seems to know exactly what it is or how to treat it please could you give me some advise as it has become unbarable and very irritable.

I'm 23 years old, nearly 24. I started out with eczema around my ankles and on my feet. I had a leg operation at aged 12 to straighten my feet. As a result my circulation's been affected badly. In the last few months I've had this pop up. It's that and/or pigmented purpuric eruption. It really worried me because I didn't know what was wrong with me, however the doctor told me that it's not a life threatening thing. I'm treating it as a good thing. It won't really ever go away, however it won't kill me. It's gone from my ankles up my legs, really badly in big patches. It's around my knees, a few patches on my arms and one small patch on my midriff, just under where my right lung would be. I've looked at the advice given here and it looks good. I'm currently trying to emigrate and it's been a stressful time. Perhaps that might also be a cause. I wear circulation socks, I was advised in May 2008 that it would be a good idea, however I don't know if it's really helping.

After 13 years of symptoms on and off and being told there was nothing wrong with me I finally got a diagnosis of lichen sclerosis, I also have had lichen planus for the same amount of time all over my back. I also have very dry skin and ecezma, the itching has really intensified over the last 2 years but it is dificult to know whats causing it with so many different things going on. I take antihistamines daily which help and I wash with dermol and then use doulble base on my body and Elocon for the ecxzema. I have Epiderm for the genital area as well as steroid cream (Dermovate). All these creams help and the dermovate does improve the skin that has fused together but it is more painful and only short lived as it quickly reverses when I stop the dermovate. I recently found out that my grandmother had lichen sclerosis and my dermatologist says it can be hereditary. One of the worst things is the lack of support once there is a diagnosis, there is no help or advice or understanding to help you get your head round it, the impact on sexual relationships is difficult to deal with, you lose your confidence and feel like a freak and no help is there. There were no leaflets, factsheets, information about what to expect, the dermatologist apologised that they had no information at the hospital. Incidentally, I had 4 gynae operations whilst I had OBVIOUS and NOTICABLE skin changes and the gynaecologist didn't notice anything wrong!! I am trying to manage this and look for info where I can particularly on the internet but there isn't a great deal of info I am afraid