Hi i was diagnosed with Lipodema about 6 montha ago a similar condition to lymphadema except it occurs in both limbs, I also have it in my stomach. Just thought i would share my experience. I get a treatment called Manual Lymph Drainage on my legs, arms and stomach 4 times a week. At the end of my sessions i wear bandages on one limb for 24 hours and then go back for more treatment. Within the 24hrs the fluid reduces dramatically. I also will be measured for compression garmets which i will have to wear all the time. These aparantly reduce the fluid even more. I am only being treated for 4 weeks now so far and i have seen huge improvement on both my legs, stomach and arms. This treatment is apparently used for lymphadema aswell and does give results.

i have a swollen stomach i have had it for about 4years . last year i went to my gp who sent me for a ultrasound which came back clear . i am 41 years of age and i weight 14 stone . all of my life i weighed 7stone what do u think is wrong . when i went to the hospital the doctor asked if i have had a hystertomy and i said no but forgot to ask him why he asked that question thankyou.

My 17 month old son has this condition. He had it from birth but then it went away. When he was 6 months it came back again. He suffers from no pain with this and it does not hinder him in any way. We had numerous hospital visits before they diagnosed him. His foot and calf were very swollen.His skin didnt change,it didnt turn blue or red like some comments have reported. Our last visit to the hospital my son was fitted with an elasticated bandage which puts pressure on the swollen areas. My son has to ware this all the time, but taken off at bedtime. Swimming also helps this condition and on our next visit to the hospital they are going to show us a massaging technique. My son can where normal shoes or trainers. The pressure from these will help the swelling of the foot. It has been 7 months since my soon first wore the bandage and the swelling has gone down loads. Our next appointment is april. Hopefully we can move on to the next stage of treatment then.

my mum possiblie has this condition but in her arm but her arm has gone really hairy like a monkey does any one else have this problem

I have had swollen calves for about 5 years now. I am overweight but the problem came on very quickly after a motorcycle accident that damaged my knees. I was diagnosed and cured of Lyme Disease a couple of years after that and since then, my lower legs have swollen to twice their previous diameter. My doctor advised against liposuction, suggesting instead I go on a Xenical diet but I know it's not my weight causing this. I use elastic knee supports to reduce the swelling for a day or so but it comes back. I really want something done so that I can wear shorts, skirts, boots and swmming costumes again!

I believe myself to have lymphoedema and my doctor is saying I am making it up and will not refer me as I am too young and there is no swelling. The swelling IS there and only in my left foot. This has been so bad I have had to go to my local A&E dept as I lost all blood in my toes. Again, they just asked if I was pregnant (not at all, not even overweight) and told that as it is only one foot there was no point to investigate any treatment. I pushed and pushed and reluctantly they sent me for an ultrasound of my leg to the groin, they found no clots and have since ignored me and said I was fine. It has not been almost 10 years and I am now 27, I cannot wear sandals in the summer and can hardly bend the toes. I am at my wits end and get very depressed about it, would like some advice please please please.

I think I have this condition, I have had permanently swollen ankles and the fleshabove my ankles looks misshapen since the onset of puberty. Luckily there is no pain though, unlike others who have posted here. I first asked my GP about it at 13, he told me I was making it up and just wanted him to prescribe diuretics so I could lose weight! He asked me my waist size, which was 24" and he said "and the rest" and fobbed me off with diuretic pills. I took one and got an excruciating headache and felt really thirsty, so I flushed the rest of the pills down the loo. (My recollection is detailed as I was so shocked by his attitude and to be called a liar by someone I had previously trusted! He also said I would probably get varicose veins by the time I was 30, like my mother (which was untrue, btw). The next time I dared raise the subject was at 37 - I was (am) sick of having to hide my legs under trousers and hunt around for shoes that don't make it worse - it really dents one's self confidence. That time, the doctor initially stared at me, silently, until I told him I wanted advice and if he was worried about his budget then I would go private if necessary. He then said it couldn't worry me that much as I'd only just mentioned it! I asked if he thought some kind of liposuction treatment might help or whether the condition would return my ankles to the same state afterwards. He just said he didn't know. End of conversation. So, if there is something that can be done, please someone let us all know about it!

Hi, I am 61year old male, Ihad a heart bypass 18months ago and have back and thigh muscle problems. I also get very itchy (mainly at night) white spots or raised skin mainly below the knee but some also on the thighs. I have had these for a few years. The doctor said it was from sun damage, but could it be anything else? I am a pale skinned person and have never been one for sunbathing. Thank you.

I AM 35 AND FOR THE PAST 4 AND A HALF YRS I AVE HAD SWELLING ON MY HANDS ARMS FEET AND ANKLES I WAS PUT ON DIRETICS FOR A YEAR WHCH DIDNT HELP MY LEFT LEG IS CAUSING ME THE MOST PAIN CANT BEND OR PUT ANY WEIGHT ON IT CANT KNEEL ON IT. I HAVENT BEEN ABLE TO WORK FOR LAST YR PULLED A MUSCLE IN Y BACK BECAUSE OF THE WAY I HAVE TO WORK MY DOCTOR DOESNT SEEM TO WANT TO NO IT URTS TO SIT IT HURTS TO WALK IT HURTS TO BEND OR PUT WEIGHT ON IT I FEEL SO ALONE AT THE MO CAUSE NOTIN I DO WORKS WEN I WAS AT WORK I BIKED IT THAT SOON BECAME A PROBLEM SO THEN I WALKED 6MILES THERE AND 6 MILES BACK OR SHALL I SAY HOBBLED WHICH CAUSED ME MORE PAIN AND MORE SWELLING I WAS ALSO ON MY FEET FOR 12 HOURS 5-6 DAYS A WEEK I WOULD HOLD MY TEARS TILL I CAME HOME FROM WORK THEN JUS BREAK DOWN WITH THE PAIN 4 TIMES WORK SENT ME TO A&E THEY TOLD ME TO GO TO MY GP AND DEMAND TO BE SENT TO A SPECIALIST I MENTION IT TO GP THE SPECIALIST APPOINMENT NEVA HAPPENS I AVE CHANGED MY DOCTORS 3-4 MONTHS AGO BUT ALL THEY SAY IS GO BACK TO WORK THERS NO PROBLEM WHY U CANT WORK BUT THEY DONT SEE THE PROBLEMS I AM HAVING I CANT GET IN THE BATH I HAVE A BENCH THING ON THE BATH I AVE TO SIT ON PICK MY LEGS UP AND PUT THEM INTO THE BATH THEN I GET SHOWERED I CANT SIT FOR TOO LONG AND YESTERDAY I KNOCKED MY LEG WHICH HAS CAUSED ME MORE PAIN I SEEM TO BE STRUGGLING WITH THIS I DONT NO WOT TO DO I TRIED SWIMMING I SWELLED UP AND WEN I GO TO COOK I SWELL UP ESPECIALLY WEN PEELING POTATOES CAN ANYONE GIVE ME ADVIVE PLEASE

hi am am 35 years old and for the past 4 and a half years i ave had swelling on my legs arms angles and feet i was working untill last year i got sent home from work sick as i pulled a muscle in my lower back due to the fact of the way i am havin to work i cant bend my left knee cant kneel on my knees and i cant take the weight of any kind on my left knee. when i was at workin and using my arms and hands my left arm swelled up so bad i couldnt grip anything or take the weight i had trouble using my fingers to grip things because they got so bad i was sent to a & e a few times from work 4 times and they told me to demand i be sent to a specialist but that neva happened was put on fruisimide but that just made me wee for england i ave bin put on various anti inflammatories nothin worked my doctor kept sayin about sending me to a specialist but that neva happend, after 4 & a half years i had enough and i changed doctors and all they keep sayin to me is u really need to get back to work and i am not happy about u being off work i no in a months time i will ave trouble gettin a sicknote from them again. if i was sorted out in the first place i wouldnt be in this mess up till a year ago i was working as a carer i loved my job found it difficult to go go on but i stuck it out carried on i cycled to work for a while but then my leg lost power because of the swelling ,i cant even get my leg over the bike now let alone ride it so i walked or hobbled to work 6miles there 6miles back worked my 12hr shifts wiv a struggle but carried on untill i pulled a muscle in my back i still went to work but made the mistake of sittin down for 10min break i couldnt straighten up again i still refused to go home untill eventually i got sent home and told to go to the doctors which i did my back muscle would not ave gone if my legs got sorted out.i cant sit for too long now either and icant take my 13yr old dog out that far now either and sometimes i cant even peel a potato because my fingers cant grip. i ave had headaches as wellbut find it helps if i sit on my bed wiv my legs up or lay down no one seems to understand they put it down to diet and exercise but as well as walkin or cycling i was swimming twice a week as well and i dont eat fatty foods sometimes i dont eat at all WHY bedcause it bothers me and gets to me wen ur told by ur doctor and mates all it is is fat stop eatibg go on a diet exercise i am at the end of my tether i dont no wot to do now can anyone suggest anything that migt help or give me some advice please