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Conditions

Vulvodynia

Vaginas

This unpleasant condition causes chronic pain and discomfort in the vulval area, with the most common symptoms including stinging, burning, irritation and rawness. The condition can vary in severity; for some they experience only mild discomfort, but for others it can severely inhibit their normal lives and prevent enjoyment of sexual activities. There are treatments available, including anti-depressant and anti-convulsant drugs, but there are also creams and gels that can be applied to help with the pain. With up to 15% of women suffering with this condition, you can be sure that you’re not alone, and your GP will be able to help.

Comments and Questions

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I have been suffering from labia sores for nearly 3 years. I have had the talk about soaps and cotton underwear. I have had a biopsy on of them but still no relief. I wash with dermol 500 but my trigger is heat.I get very sweaty in that area and on top of that periods make you moist aswell.Nobody understands that when these sores appear I find walking and even sitting uncomfortable.After a while the sores bleed and disappear but not for long.Could anyone advise me.I am an Endometriosis sufferer and have had kidney probs which i can cope with but the sores are the last straw!





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Hi all, I have been suffereing with this horrible condition for five years now and I am only 23. It was like one day I was fine and the next day I was completely miserable. It's scary how fast it can come on. I was seriously suicidal and just couldn't bare the idea of living my whole life like this. I felt my life was over at age 18. I think there are multiple causes of vulvodynia and I think some may be due to yeast or something my body is producing. I think the pain can be caused by chronic yeast infections or you are allergic to whatever your body is producing. I mostly have itcing, but also burning and stinging. However a Tibetan doctor (I was desperate to try anything)She told me to put gauze up in that area, like tucked up in there so there isn't to much movement which can cause irritation. I felt that having this gauze absorbed the mucus and discharge coming out which I think was causing an allergic reaction or keeping the yeast out of my vulva which causes irritation. Though it isn't completely better, it has helped and I can function more normally and am not as depressed. I just knew I couln't go on the way I was before and something had to cause some relief. All I can say is that us women have to help eachother because it is a condition that is just not getting recognized or studied. We are pretty much on our own because there are more serious, deadly condions out there that need to be researched. This really gets to me because this condition is horrible and if it causes woman to be suicidal and not be able to funtion in life they should figure out a cure or some kind of relief!!!! Stay strong!





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I have suffered with vulvodynia for over three years now. I was only diagnosed a little under a year ago but I have been making good progress. One of the things that has really helped me is pelvic floor exercises. You find that when you are in pain, you tense your muscles, which only makes it worse. So, as bizarre as it sounds, insert your figure into your vagina and clench around it for 10 seconds, then really concentrate on releasing and relaxing your muscles. do this about 4 times a day. To be honest, it took months before I noticed it getting any better so keep at it. I also 'massage' the muscles in a swooping action to 'desensitise' the area. Stress seems to aggrevate it so i do yoga every week and i fid even accupuncture helps to relax me. And another piece of advice, which i found the hardest do follow, try not to think about it! Easier said than done when you are in chronic pain but it will only drive you crazy. If you're feeling really bad, talk to someone about it. Don't suffer alone.





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oh Kirsty, i know exactly how you feel babe, this has almost ruined my life! i lost two stone in two months, couldnt sleep, suffered with anxiety big time. again i was going back to the docs every week! i have just had a funny time with it this week, i have been in tears and its all i can think about. its soo unfair to see women all happy and knowing that their bits are ok and mine arent. but its got better ast the mo and i feel normal (until the next time). i am currently 20 weeks pregnant and i am determined to get this burning and rawness out of my head! i am going to give this aloe vera a go though. if that does work, amputation seems like a good idea. my mum is brilliant and she is true in saying things can be so much worse, and they can. but to me this is the worst thing ever and i just want to be a normal 23 yr old.





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Oh my god what a relief it is hearing i am not alone. i suffer from cuts and sores around my vagina and have been to so many doctors and specialists and tried so many different creams but have been unsuccessful. sex is out of the question and even undewear irrates or cuts me. It is so depressing and ruining my relationship. i am only 24 but havent been happy in such a long time and it is all down to this. i dono wat to i can do?i keep telling myself i will have to deal with it as it is something i will have for rest my life, but its so hard to stay positive, i wish there was something i can do. Im just so happy im not alone.





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hi i have rather big lips in my vagina and it bulges out in my pants and people can see in the changing rooms or in swim suits. I dont want to get a boyfriend because i have to have sex at some point but i am really embarrassed about it and scared he makes fun of me and tells his mates. please help.





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Julie your jeans envy actually cheered me up - I too look fondly at the lovely jeans I used to wear, that's why I was so pleased to find the next loose summer trousers that have a bit of a jeans look. Their natural fibre so they don't seem to irritate me. I did get back into my jeans two years ago but a womens health physio gave me poor advice to just go for it with sex and it caused a flare up. Its nice to hear I'm not mental when I look at other girls & think they must be normal in those trousers, however I do comfort myself when I see the odd muffin top! I think the trouble is because it is something you would not want to talk about (believe me my sister does not even fully know and only knows a bit now after 6 years) its hard to think that many people suffer. After all I go out of my way to hide it from people & look perfectly healthy. However my mother suffers too & its thought to have a hereditory link. The more we bang on about it and pester the doctors the more breakthroughs will come. I have had my darkest days with this but I'm still carrying on and got 90% better before my relapse and I am slowly getting there one step forward at a time. I actually find if all else fails a qtr to a half of diazipram (spelling?) helps the muscles relax. It does give you bonkers dreams though. Plus I can't stress the importance of relaxation enough - I know it feels impossible when your in pain. Glen Harrold's hypnotherapy is good for beginners, I am a big Deepak Chopra fan. Its a bit bonkers but he has got something that really works just to help sleep & take the edge of your pain. Unfortunately your mind is not your friend sometimes when in distress. This forum has been really good for me & I will try nelson's cream instead of the calendula sometime. Don't give up on yourself anyone & don't let your doctor either!





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I am 19 and have been suffering from these symptoms for about a year. I have spent hours and hours searching the internet and am convinced i have vulvodynia, although the numerous visists to doctors haven't diagnosed it yet. I find it really hard to deal with and I am in a long term relationship and often feel i am not a real woman as I can't have great sex, and approach every time with the thought that it will hurt but i have to just get through it and i'm scared this will affect my attitide to sex later on. None of my friends understand what its like or how bad it is, so its hard to talk to someone about it. I don't know what to do anymore and it seems that there is no cure. Would be great to talk to some of u about it. Thanks x





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i am in a sexual realationship with 2 years but everytime i have intercouse i get a really neasty burning felling and the day after it would still be burning.it messed up my first realtionship and im going into another one. do i have vulvodynia or what do i have?? can any help me???





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I began to experience extreme soreness and itching around the vulva some nine months ago. At age 60 I still had a very active sex life with my permanent partner however this became so painful it has now ended. After a six week wait I visited a gynae today and after waiting two hours to see him he showed little interest in my condition suggesting, as everyone else has experienced, thrush. I have had more attacks of thrush during my lifetime than hot dinners so know the symptoms and this is NOT thrush. He did offer the valuable advice to keep my nails short and avoid wearing nail varnish! The gynae was distracted by two phone calls and gave me little opportunity to explain my symptoms properly and ended our appointment early by rushing off to an emergency. I am no further forward than I was nine months ago and am so frustrated and depressed. However I do feel so sorry for any younger women with this dreadful condition as I just don't know how I would have coped years ago. I too wear just cotton knickers and now rarely trousers/jeans but found that any creams just further irritated the condition so use Simple Derma Intensive Relief shower cream and plain white toilet paper. I also bend over when shampooing so that the shampoo doesn't run down my body or use nizoral shampoo. All of these measures have eased the general soreness/itching but nothing so far has relieved the painful interecourse.





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