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Conditions

Vulvodynia

Vaginas

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This unpleasant condition causes chronic pain and discomfort in the vulval area, with the most common symptoms including stinging, burning, irritation and rawness. The condition can vary in severity; for some they experience only mild discomfort, but for others it can severely inhibit their normal lives and prevent enjoyment of sexual activities. There are treatments available, including anti-depressant and anti-convulsant drugs, but there are also creams and gels that can be applied to help with the pain. With up to 15% of women suffering with this condition, you can be sure that you’re not alone, and your GP will be able to help.

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Hi there, I have had Vulvodynia for many years now and have found that the most up-to-date information that is available is the VPS Vulval Pain Society www.vulvalpainsociety.org The 61 page handbook is approx £10.00 and the group is run voluntarily and any money raised, goes to running costs in helping people like us. It also covers every aspect of the condition and treatment etc plus other vulval conditions too. I hope this helps.





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hello everyone. i have suffered with vulvodynia for god knows how long and have tried it alll.. amiprityline (or how ever its spelt) creams other tablets etc etc. the only thing that worked (abit) is a numbing anasthetic cream called lidocane ointment. put it on about 20minutes before (warning this killllls) and after 20min it will have numbed you a bit and you can have sex. obviously this wont help you in any way but will help your partner!! also you may have noticed it hurts more if your partner ejaculates inside you. this is as sperrm is acidic so try to refrain letting this happen! or use a condom. i have seen specialists bla bla they were all rubbish. then about 6 months ago i went to a different doctor about something totally different and he happened to ask me about my vulvodinia and he suggested i took a medication called garapentin.. this is actually an epilepssy medication whereas amipritilyn is for nerves but i thought hey why not!! ill give anything ago. AND RESULT... he told me to take one hundred mg in the morning and 300 at nite and i did and it got better.. (im not saying go do this ) but i have stopped doing this and now i dont take itt everyday.. i just take 900mg halfhour before sex and it does work!! it barely hurts and it can sometimes be enjoyable. so everyone ask your doctors for garapentin.. and who knows it might work for you too! goood luck.. and keep your head up i know how much it can get you down xx





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Hey Julie, what is pregabalin? have these worked, or are you just having a 'break' from it since you have been on them? i find i can go weeks without it (although it will be on my mind more so then not) and then suddenly it will come on and last a couple of days on and off! i have promised myself im not going to cry and get worked up this time as i have got it on and off now.





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Hi again i left a comment about one month ago regaring cuts and sores on my vagin and how its ruining my relationship and mentally. i have just been 2 my 6th doctor and she has now referred me 2 a dermatologist. Has anyone been 2 one?is it worth my while going?just cant handle this anymore. no treatment no help its so hard





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Hi My mom has been in terrible pain since January and sounds a lot like vulvodynia or maybe Pudendal Neuralga? Can any of you offer any suggestions she has been treated for thrush, cystitis,she has had an MRI scan which is clear. The doctor is now sending her for an imaging scan. I hasten to add this is a doctor who she has had to pay private to seen in the end because her Nhs doctor was basically suggesting she was losing her mind! Her symptoms include vaginal and anal pain, unable to sit down without pain. Stinging, burning in her vagina and pain in her back passage. I feel helpless any suggestions what to do next to get someone to listen?





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I have white spots on my libia, it sometimes itches like thrush i was wondering if this is normal.





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I am on pregabalin now and i have had a good two weeks, but who knows when it will come back it is so random. I have also been to see a clinical psychologist and i found her very helpful to talk to. I know it will come back but i take the good days when i can. I find that when i am on hols i suffer a lot less with it so with me heat doenst affect it.





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I was just wondering, some comments have been made about vulval vestibulitis and that pelvic floor exercises seem to help. What sort of pelvic floor exercises are they? I've been suffering for about 2-3 years and it's been getting more and more difficult to have sex, because of the pain. I find it very hard to wear tampons too, as they really hurt at times and it feels like I'm pushing it in against a wall of some kind, even though I know I'm putting it in properly. I've tried my local GUM clinic and they did try to help me, but beyond giving me anaesthetic gel, which only seemed to help occasionally and for a while, they couldn't really do much as they said there's no cure. So really, if anyone can recommend anything I would be VERY grateful. I'm desperate. My doctor knows nothing at all about these sorts of problems and I HATE that I might never be able to have sex with my fiance again at this rate.





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sorry forgot to add as well, while we had the heat wave a few weeks ago it was bad at times then, and i did notice it was bad at times also when i went on holiday, so i also think the trick may be to try and stay as cool as you can down there!





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hello, me again. well for the past few weeks touch wood, i have been fine (apart from i have now got swine flu). i have paniced a bit about it coming back, but i think its stress that mostly brings it on! i do find that lidocane helps me out, when i get it bad. but after ive had my baby im going to push my doc into going a step futher into this! got to stick with it!





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It looks like no one else has asked this question, so please fill in the rest of your details below.





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