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Conditions

Vulvodynia

Vaginas

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This unpleasant condition causes chronic pain and discomfort in the vulval area, with the most common symptoms including stinging, burning, irritation and rawness. The condition can vary in severity; for some they experience only mild discomfort, but for others it can severely inhibit their normal lives and prevent enjoyment of sexual activities. There are treatments available, including anti-depressant and anti-convulsant drugs, but there are also creams and gels that can be applied to help with the pain. With up to 15% of women suffering with this condition, you can be sure that you’re not alone, and your GP will be able to help.

Comments and Questions

The EB doctors have been looking at your comments and have answered some of the common questions below. Remember that it is always best to check with a health professional if you have any concerns about your health.

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Please note: Unfortunately Channel 4 cannot respond to individual inquiries. If you have any concerns, you can check out NHS Choices, but ultimately it is always best to check with a health professional.

hey louise, your mum isant losing her mind. its real and so is the pain. i have been back and forward to the docs for over a year now and i have been a mess. its taken me this long to get to a diagnosis. i thought it was vulvadynia but now i am convinced its pudendal nerve, it is made so much worse sitting at work and i feel irritable and sore. it eases when i lie down or sit down on the settee. my next step is to find a doc that specilises in this. i think your mum should do the same.





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Hi, this is an interesting post. Ive had a "sore bit" down which started in 2002 when i first had sex. It healed up eventually. Then i didnt have sex for about 4yrs and then now i am doing its come back! had it for 2 yrs now. had loads of creams and nothing clears it up. it worse when i have a bowel movement as well and really stings! My vagina really burns and often hurts during sex. I have had a biopsy on this sore bit and it just came back as being "inflamed skin". And the gp gave me a steriod cream. it just doesnt work!! It makes me feel so unconfortable down below and i feel unclean all the time. Do you think this could be Vulvodynia Syndrome?





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Hi Im 17 and have been with my boyfriend for about a year now. Ive been having the symptoms of Vulvadynia for about 7months now and i hate it! I been to my doctor about 4 times and each time they just give me antibiotics. I recently saw on the show about this and really want to know of any creams or anything i can use to help get rid of it. I dred sex because of it and i just want to go back to how it was before it started. Please just give me any advice :(





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After reading the above, I am in total "AWE" of these women, that have suffered for many years ! I too have "Vulvudyna", which eventually was diagnosed by the GU Clinic, by a specialist consultant, who had been studying it in the STATES. There is alot of research going into this over there, and thankfully, i picked a day, that, that specialist diagnosed my problem, after being bommaranged back and forth from dr to dr. It destroyed 2 relationships, went away for a year, then a new relationship triggered the darn thing off again !My new partner although sympathetic to a point, could not see anything wrong, did not understand the "Rawness" you felt all the time, no knicker syndrome, seemed to be a Turn-on for him, and not a sign that I was in total discomfort all the time ! With the help now of "Amatrypiline" of 80mg per day, plus an operation on my bladder and tightening of the vagina anteriar and exterior walls, which the consultant, was woried would start the attacks again. I feel after nearly months free of attcks, almost human. So far the operation whichis only 2 weeks ago, has not yet triggered off any attacks. But like most of the ladies above, we all live in fear that this may arise and cause us distress all over again. I am not too sure whether my relationship at present will manage to continue with this terrible problem, but I know for sure, that "SEX" is definately something that triggers it off. So a celibate life I will lead, as I just could not put up with the terrible pain in my life again !





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Hi there, I have had Vulvodynia for many years now and have found that the most up-to-date information that is available is the VPS Vulval Pain Society www.vulvalpainsociety.org The 61 page handbook is approx £10.00 and the group is run voluntarily and any money raised, goes to running costs in helping people like us. It also covers every aspect of the condition and treatment etc plus other vulval conditions too. I hope this helps.





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hello everyone. i have suffered with vulvodynia for god knows how long and have tried it alll.. amiprityline (or how ever its spelt) creams other tablets etc etc. the only thing that worked (abit) is a numbing anasthetic cream called lidocane ointment. put it on about 20minutes before (warning this killllls) and after 20min it will have numbed you a bit and you can have sex. obviously this wont help you in any way but will help your partner!! also you may have noticed it hurts more if your partner ejaculates inside you. this is as sperrm is acidic so try to refrain letting this happen! or use a condom. i have seen specialists bla bla they were all rubbish. then about 6 months ago i went to a different doctor about something totally different and he happened to ask me about my vulvodinia and he suggested i took a medication called garapentin.. this is actually an epilepssy medication whereas amipritilyn is for nerves but i thought hey why not!! ill give anything ago. AND RESULT... he told me to take one hundred mg in the morning and 300 at nite and i did and it got better.. (im not saying go do this ) but i have stopped doing this and now i dont take itt everyday.. i just take 900mg halfhour before sex and it does work!! it barely hurts and it can sometimes be enjoyable. so everyone ask your doctors for garapentin.. and who knows it might work for you too! goood luck.. and keep your head up i know how much it can get you down xx





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Hey Julie, what is pregabalin? have these worked, or are you just having a 'break' from it since you have been on them? i find i can go weeks without it (although it will be on my mind more so then not) and then suddenly it will come on and last a couple of days on and off! i have promised myself im not going to cry and get worked up this time as i have got it on and off now.





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Hi again i left a comment about one month ago regaring cuts and sores on my vagin and how its ruining my relationship and mentally. i have just been 2 my 6th doctor and she has now referred me 2 a dermatologist. Has anyone been 2 one?is it worth my while going?just cant handle this anymore. no treatment no help its so hard





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Hi My mom has been in terrible pain since January and sounds a lot like vulvodynia or maybe Pudendal Neuralga? Can any of you offer any suggestions she has been treated for thrush, cystitis,she has had an MRI scan which is clear. The doctor is now sending her for an imaging scan. I hasten to add this is a doctor who she has had to pay private to seen in the end because her Nhs doctor was basically suggesting she was losing her mind! Her symptoms include vaginal and anal pain, unable to sit down without pain. Stinging, burning in her vagina and pain in her back passage. I feel helpless any suggestions what to do next to get someone to listen?





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I have white spots on my libia, it sometimes itches like thrush i was wondering if this is normal.





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It looks like no one else has asked this question, so please fill in the rest of your details below.





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