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Embarrassing Bodies: Live..., 11:05pm Thursday 17th April 2014 on Channel 4. Catch up for free on 4oD »

Video

Voiceover: Dionne Rodden suffers from a condition so rare that for twelve years no one has been able to identify it.

Dionne: It first appeared when I was about thirteen years old, about two weeks after I decided to shave my legs for the first time. I went to the doctors and they told me I was actually allergic to the razors. That was the first thing I was told. I then went to see a dermatologist and they told me it was a very bad form of eczema or a skin condition but they couldn’t give me a name for it. They didn’t actually know what it was. Actually my skin cracks apart and peels, then it fuses itself back together again, then cracks apart and bleeds, fuses itself back together again. It’s absolute agony. I’ve took to actually bandaging my legs whenever that would happen. Applying lots and lots of cream to it, then taking the bandage off would be a problem as little parts of the bandage would be embedded in the skin and it would be agony to try and tweeze little pieces of bandage out of my legs.

Voiceover: Dionne has suffered for twelve years, often bedridden with the pain. She’s seen dozens of specialists but no one knows what her condition is. After twelve years of suffering, Dionne decides to visit the embarrassing illnesses clinic.

Dr Dawn: Come on in, take a seat. Tell me what can I do for you?

Dionne: I have a skin condition on my legs where it peels apart and stretches and it bleeds.

Dr Dawn: Is it sore?

Dionne: It can be very, very sore.

Dr Dawn: Well, I probably need to have a little look actually, Dionne. Can I get you to pop up on the couch?

Dr Dawn: Ah, ok. And this is good is it?

Dionne: This is it at its best.

Dr Dawn: When it’s bad do they flake off?

Dionne: Yes and it will bleed through these cracks here and that’s when it will crack and bleed.

Dr Dawn: So it actually cracks on these paler areas?

Dionne: Yes.

Dr Dawn: I think it’s something called Ichthyosis, have you ever heard that term before?

Dionne: No.

Dr Dawn: No? It’s a condition where the skin scales much more than normal because, of course, it’s normal for us to shed skin, skin cells only live about 14 days and then we shed them. People with Ichthyosis tend to shed much more skin, they produce more layers of skin and they shed it more. It often does crack so it scales and cracks so exactly the kind of thing you are describing. There’s bad news and good news. The bad news is it’s not curable but the good news is there’s quite a lot we can do to make it better and this certainly isn’t the worst case I’ve seen, ok? Jolly good.

Voiceover: A specialist dermatologist prescribes another set of creams but this time she has to apply them in an altogether new way.

Dionne: This is one of my rituals that I have to go through on a daily basis which is mixing two creams together then applying the cling film, which I then take off about hour to two hours later. Occasionally I’ll sleep with it on.

Voiceover: After twelve years, has Dionne at last found her miracle cure?

Voiceover: For years no one has been able to diagnose Dionne’s scaly legs. Dawn came up with Ichthyosis and prescribed a simple cellophane and cream treatment. But, did it work?

Dr Dawn: Hi Dionne. Come on in. Now tell me, how have you got on?

Dionne: Everything is going quite well actually.

Dr Dawn: Really?

Dionne: Yeah.

Dr Dawn: Shall we have a little look? Oh wow! Dionne, that’s loads better. That is phenomenal!

Dionne: It’s fantastic. Now I don’t have to worry about bandaging it up anymore because there hasn’t been any splitting or cracking whatsoever.

Dr Dawn: That’s incredible!

Dionne: It’s fantastic.

Dr Dawn: You’ll be wearing shorts and skirts, won’t you this summer?

Dionne: Summer here I come!

Dr Dawn: That’s phenomenal. I’m really pleased. They look great and they feel great.

Dionne: Yeah. I’m well happy now.

Dr Dawn: Well done! That’s brilliant. Well, thank you for coming back.

Dionne: You’re welcome. Thank you for your first diagnosis, otherwise I might not have known. Bye.

Dr Dawn: Take care.

Read the video transcript

Consultation: Ichthyosis

Dr Harper treats a women for the skin condition Ichthyosis, with amazing results.

UPDATE

The treatment given to this patient was a combination of Cetraben, Culmurid and Eucerin and then a cling film wrap, but it might not work for everyone so best to go to your GP and get their professional opinion.

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Comments and Questions

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I have the same problem till I can't get married because of my hard skin everywhere and I m not fell confidence if some people wanted to shake my hand or winter come I have to struggling a lot .spending money with lot of brand lotion soap and peeling but there's no results sometime fell why this happening to me? And I'm 29 years old now I never fell that massage on my body ever *(





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sir I and my younger brother also suffering from ichthyosis-vulgaris by birth. Can it be cured. What is the medicines. Please help me. Now I am 52 yrs. My borther is 40 yrs.





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Hi, One of may friend has skin problem (ichthyosis vulgaris) through out her body. I just saw the video their is some sought of treatment available and Dr Harper from this link http://www.channel4embarrassingillnesses.com/video/embarrassing-bodies/consultation-ichthyosis/ had given some kind of cream or lotion to better results for skin. Please let us know the medicine name, cost and way of order.

Hi way older...... I think you made a great connection with the warmer weather. Check out your own water at home and what levels of hard water it is. typically a low level is under 13 to as high as 28- this call for a salt water system where actual salt tablets are added to your water softner. In addition sweating combined with Ocean salt water is very helpful during the winter months when the weather is cold- It might mean taking a mandatory vacation someplace warm with oceans and salt water. I would offer this try Sally Beauty supply UNICARE black and red label also you can find this on line this is relatively inexpensive I buy it by the gallon Aquafor and Eucerin cream works but its really kind of sticky- You can if its on your legs apply and then sleep with cotton stocking overnight- this can also work for hand by wearing cotton gloves and or socks at night if its on your feet- On scalp I would recommend the Unicare as it is light barely noticeable and can be used as an all over cream for your hair and body. I am right there with you girl with if people have an issue it is their problem- Most often it is merely ignorance and fear that people say things- Often the gifts we have fall in the arts in creativity, music, arts, and the empathy we can have for others. It can be a cruel world out there- If you allign yourself with other like minds it makes it much easier...... Foundation called FIRST foundation Ichthyosis rare scaley skin disorders based in PA has conferences all over the country- I am an ambassador in Florida to answer question offer advice and encouragement- Good luck in this journey in a tell all world of visual reality shows....





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Hi my son has had atopic eczema since a baby he is very bad at the moment have tried everything. I am seeing a consultant dermatologist in Crumlin (dublin) for the past 2 years they told me today he is lacking a protein in his skin called filaggrin (filement aggragating protein) do you have any more research on this if the protein can be put back in his skin. we are now told to take milton baths twice a week.cream 3 times a day moisturize 3 times a day use viscopaste bandages everynight for a week. He has very dry skin I am already doing a full routine and not working mabey this will.i am exausted from it i really could do with your advise. we look at your programme here in ireland its brillant. I am not a nurse but like medical reasons why something is wrong. love to hear from you. One more thing is Epidermolytic Ichthyosis the same as lacking in this protein filaggrin. thank you





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Hi there. My 2 years old daughter been diagnosed with mild form of ichtyosis vulgaris . Is SR lotion applicable to babes?





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My son has this too. I have brought lush products and have exfoliated his skin it works wonders x

In reply to the sr lotion treatment, I was quite sceptical, but am willing to give anything a try. Well I am glad I did try it, as this is quite simply the best cream I have used on my ichthyosis. To look at my skin now, you would not think there was anything wrong with my skin and it has completely cleared my condition. I cannot speak highly enough of it. To anyone who is undecided you need to try this seriously. I purchased from srlotion.com on a thursday, and it arrived on the friday.





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what is the name of that lotion?i am suffering also from itchyosis and i don't know what is the best treatment..can you help me?

hI,I m 60 and have been diagonised with ichylosis,iam prescribed with cetraben ,aquadrate,and synaler .Its been about six weeks ia am using this.I have seen a very slight improvement.Is there any other cream which can get rid of it?





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Can you please tell me how long I keep the cling film on? I have really bad dry skin... It left mark on both my legs and looks like snake skin :( Thank you





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Can you please tell me how long did it take for Dionne to get the result.I have been applying those creams for about two weeks now but my condition is still the same...please help

winter session skin is thick fish type scale and very dray





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There is a fantastic new treatment for Ichthyosis, I have had Ichthyosis all my life and tried every remedy without success, I tried a new lotion recently called SR lotion and used it for 6 weeks and now have pretty much perfect skin. I have to say I would recommend it to anyone as it has changed my life, but unfortunately it is hard to get hold of though. I have searched everywhere to get more but you can only get it at www.srlotion.com





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hi there ive been struggling with this skin condition way to long now im 36 yrs old and never had good skin were can i get SR lotion from i need to try this ? is it on priscription?

Hi it is only at the website www.srlotion.com as far as I can see, I asked my GP and they could'nt get hold of it on prescription

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