WARNING: The Embarrassing Bodies website contains images of an explicit medical nature and nudity in a medical context.

Embarrassing Bodies, 12:05am Friday 27th May 2016 on More 4. Catch up for free on All 4 »

Video

Voiceover: Dionne Rodden suffers from a condition so rare that for twelve years no one has been able to identify it.

Dionne: It first appeared when I was about thirteen years old, about two weeks after I decided to shave my legs for the first time. I went to the doctors and they told me I was actually allergic to the razors. That was the first thing I was told. I then went to see a dermatologist and they told me it was a very bad form of eczema or a skin condition but they couldn’t give me a name for it. They didn’t actually know what it was. Actually my skin cracks apart and peels, then it fuses itself back together again, then cracks apart and bleeds, fuses itself back together again. It’s absolute agony. I’ve took to actually bandaging my legs whenever that would happen. Applying lots and lots of cream to it, then taking the bandage off would be a problem as little parts of the bandage would be embedded in the skin and it would be agony to try and tweeze little pieces of bandage out of my legs.

Voiceover: Dionne has suffered for twelve years, often bedridden with the pain. She’s seen dozens of specialists but no one knows what her condition is. After twelve years of suffering, Dionne decides to visit the embarrassing illnesses clinic.

Dr Dawn: Come on in, take a seat. Tell me what can I do for you?

Dionne: I have a skin condition on my legs where it peels apart and stretches and it bleeds.

Dr Dawn: Is it sore?

Dionne: It can be very, very sore.

Dr Dawn: Well, I probably need to have a little look actually, Dionne. Can I get you to pop up on the couch?

Dr Dawn: Ah, ok. And this is good is it?

Dionne: This is it at its best.

Dr Dawn: When it’s bad do they flake off?

Dionne: Yes and it will bleed through these cracks here and that’s when it will crack and bleed.

Dr Dawn: So it actually cracks on these paler areas?

Dionne: Yes.

Dr Dawn: I think it’s something called Ichthyosis, have you ever heard that term before?

Dionne: No.

Dr Dawn: No? It’s a condition where the skin scales much more than normal because, of course, it’s normal for us to shed skin, skin cells only live about 14 days and then we shed them. People with Ichthyosis tend to shed much more skin, they produce more layers of skin and they shed it more. It often does crack so it scales and cracks so exactly the kind of thing you are describing. There’s bad news and good news. The bad news is it’s not curable but the good news is there’s quite a lot we can do to make it better and this certainly isn’t the worst case I’ve seen, ok? Jolly good.

Voiceover: A specialist dermatologist prescribes another set of creams but this time she has to apply them in an altogether new way.

Dionne: This is one of my rituals that I have to go through on a daily basis which is mixing two creams together then applying the cling film, which I then take off about hour to two hours later. Occasionally I’ll sleep with it on.

Voiceover: After twelve years, has Dionne at last found her miracle cure?

Voiceover: For years no one has been able to diagnose Dionne’s scaly legs. Dawn came up with Ichthyosis and prescribed a simple cellophane and cream treatment. But, did it work?

Dr Dawn: Hi Dionne. Come on in. Now tell me, how have you got on?

Dionne: Everything is going quite well actually.

Dr Dawn: Really?

Dionne: Yeah.

Dr Dawn: Shall we have a little look? Oh wow! Dionne, that’s loads better. That is phenomenal!

Dionne: It’s fantastic. Now I don’t have to worry about bandaging it up anymore because there hasn’t been any splitting or cracking whatsoever.

Dr Dawn: That’s incredible!

Dionne: It’s fantastic.

Dr Dawn: You’ll be wearing shorts and skirts, won’t you this summer?

Dionne: Summer here I come!

Dr Dawn: That’s phenomenal. I’m really pleased. They look great and they feel great.

Dionne: Yeah. I’m well happy now.

Dr Dawn: Well done! That’s brilliant. Well, thank you for coming back.

Dionne: You’re welcome. Thank you for your first diagnosis, otherwise I might not have known. Bye.

Dr Dawn: Take care.

Read the video transcript

Consultation: Ichthyosis

Dr Harper treats a women for the skin condition Ichthyosis, with amazing results.

UPDATE

The treatment given to this patient was a combination of Cetraben, Culmurid and Eucerin and then a cling film wrap, but it might not work for everyone so best to go to your GP and get their professional opinion.

Did you find this useful? YesYes NoNo

1001 of 1469 people said they found this useful

Comments and Questions

You can share your experiences and thoughts with other Embarrassing Bodies site-users below. Comments & Questions are reviewed by moderators, but if you see anything on the site that worries you, please report it and one of our moderators will look at it as soon as possible.
Please note: Unfortunately Channel 4 cannot respond to individual inquiries. If you have any concerns, you can check out NHS Choices, but ultimately it is always best to check with a health professional.

I am from bangladesh. i am 29 years old and suffering from icthyosis. i loose my confidence because of it. in summer i was quite well but in winter my skin become very dry and reddish. i want permanent cure from this. is there any way?





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

I just want to say thank you to the people who mentioned SR Lotion. It has changed my son's life. I am the mom of a young adult who has had disfiguring ichthyosis his entire life. Where we live, we get a lot of rain - much like the UK for climate - so no help there. I had tried at least a dozen other lotions/creams before SR Lotion with no help. Yes, it is costly - but it works. In two weeks my son had new skin that looked normal. It truly changed his life - this has been the first summer he would wear shorts, sometimes go without a shirt, go away camping with friends. He has a new confidence that is so worth every penny. I am just so happy to have something that works. You can get the SR Lotion on Amazon but, with shipping, it ends up being more economical to buy several bottles at once from the manufacturer in the UK.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

I also have had ichthyosis my entire adult life, before using Amlactin w cerapetic the only treatment was to get in the sun. Within 1 week of shorts & short sleeves I was 80% clear. I'm not afraid of the sun because I believe that our skin had a thicker layer than most. After clearing things up I do use sunscreen but be careful while using the Amlactin, no sun for 1 week cover up or you can blister.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

It is really working because i am going to get it

Hi everyone, I am 22 year old female from the Caribbean. I now live in the UK. I found myself on here after I have been looking at different websites for skin irritation amongst other things. The strange thing about my problem is that it only affects me when I am in the UK. I see none of my symptoms when I am in the heat. (sun). I'm really not sure if it is related. I get very bad dry, scaly and darkened skin which makes me look older than my age and really affects my confidence. I have tried absolutely everything. I just want to know if anyone else has has this peculiar problem?





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

Hi Shaista, I am a 33-year-old living in Australia, and I really only deal with ichthyosis in the winter, as the air becomes cold and dry. The UK and the Caribbean are two different places in terms of the weather.

Hi my name is mo I had ichthyosis since child hood I am nw 22 I have tried everything from thick creams to steroid free cream and I also suffer from asthma and nut and fish allergy u just got to be strong enyways is cupping therapy good for exzema





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

I've had ichthyosis vulgaris since I was a kid. I moved from a cold climate, upstate NY to So Cal (20 years) and Hawaii(last 8 years) The warmer and more sun I have, the better it is. I stayed in NY for 7 mos, 4 years ago and my back turned into alligator skin. It went away after a week. I know, not everyone can live in Hawaii, but the sun helps.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

Hi!!!! Everyone! I am Anna and I am 21 years old, and have been a Ichthyosis and eczema sufferer for my ENTIRE life. I have tried every creme in the book, from doublebase to hydrocortisone. How I control my symptoms: I shower once every two days, while showering I use one of the exfoliation mitts (can be bought anywhere from boots - superdrug - supermarket) - pick the roughest! Then I make a dose (usually about 2inch high) of - 3part Olive Oil - 2part sugar While showering I scrub myself vigorously with the mitt and oil mixture. Post Shower I use Calmurid. If you can PLEASE go to your doctors and ask for a prescription of Calmurid. It is sent by the gods!! It seems to strip the dead skin from your body and is lighter than most other creams so I can put it on in the morning - sit in my pjs for about half an hour while it soaks, then get dressed! HOWEVER - due to the acidic qualities - which is great for ichthyosis in the long term, try not to use it on broken or cut skin when possible as it huuuurts!!! - for about 20 mins (like vinegar in a cut) Then I pop hydrocortisone on my eczema areas and I literally SWEAR by this remedy! If you have dry skin on your face - which I also do! I use a rough flannel and hot water every morning and give it a GOOD scrub, then use 'Clinique 7 day scrub', and finish with Liz Earle goods and a Nivea dark blue moisturiser. Honestly my symptoms have completely COMPLETELY gone, it needs to be controlled by doing all these steps, but you literally cannot tell that I have or have ever had ichthyosis. - Ive had boyfriends who I have told 6 months in that I cannot shower without moisturising and explained by symptoms and they have been completely clueless the entire time - Including famous sportsmen and celebrities! Just cant keep this to me any longer!! Anna





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

Use amlactin lotion/cream works very well cvs pharmacy has a generic equal to it. Different kinds are available regular/ceramide/triple action. Careful on irritated areas lactic acid in the product will sting a bit.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

Hi, I'm a 23 year old male , I was born with Ichthyosis Vulgaris. I've been to various dermatologist and use a variety of soaps and creams with the hope that it would improve my skin condition , but each time it just lead to me being disappointed. I discovered SR Lotion which has changed my life , I saw an improvement in my skin within 2 weeks of using the lotion I was amazed at the results , after 4 weeks the scally skin seemed to have lighted drastically. I owe SR Lotion a huge thank you for helping me change my life. Please go to www.srlotion.co.za to order your lotion and improve your skins appearance.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

We have seen a similar story play out at our house - dermatologists, prescription creams and oral meds, experimenting with this, that and the other lotion - all to no avail. Two weeks with SR Lotion and there was a dramatic change. Now, you would never know there had been a problem...my son's skin looks normal. It has changed his life.

I have ichthyosis and am interested in this cream. would love to know I can get some. thank you antoine





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.


Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

Antoine - you can buy online either on Amazon or from the manufacturer in the UK. (www.srlotion.com) It is cheapest to get from the manufacturer as they charge the same to ship more than one bottle. We had very impressive results with it. Good luck to you.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your comment.



Please don’t swear or be rude in your comments, as they will not be added to the site. Please do not use your full name when posting comments. If in doubt, refer to the community guidelines

By posting on this website you are agreeing to abide by our community guidelines

It looks like no one else has asked this question, so please fill in the rest of your details below.





This will be published. Surnames, nicknames or usernames are not allowed


Your email address will be kept confidential and will NOT be published – it is only being collected here in case Channel 4 need to contact you in relation to your answer.



Please don't swear or be rude in your questions, as they will not be added to the site. Please do not use your full name when posting questions. If in doubt, refer to the community guidelines

Questions submitted to the site will be answered by other site users, not by medical professionals, so if you have a medical concern, please book an appointment with your GP.

By posting on this website you are agreeing to abide by our community guidelines


More Information

  1. Embarrassing Illnesses

    Episode Guides - All the episode guides from Series 1 of our groundbreaking health s…

  2. How to Check Yourself

    Videos - Self-check guides for the balls, boobs, vulva and skin.

  3. STI Checker

    Embarrassing Bodies Homepage - Do you like things safe and secure or do you live life on the edge?…

  4. Vaginal Dryness

    In Conditions - Vaginas should normally be moist, but due to a number of factors, s…

  5. We're Coming to Get You!

    In Episodes - The Docs are back, and this time they're coming to get you!

  6. Enlarged Labia

    In Conditions - Many women are born with larger or more noticeably asymmetric labia…

  7. Constipation

    In Conditions - Constipation is extremely common and can affect a broad range of ag…

  8. Sagging Breasts

    In Conditions - Everyone's boobs eventually succumb to the downward pull of gravity…

  9. Enlarged Prostate

    In Conditions - An enlarged prostate (known as benign prostatic hyperplasia or BPH)…

  10. Perimenopause

    In Conditions - The perimenopause is an inevitable right of passage leading up to t…

  11. Prolapsed Rectum

    In Conditions - This is a painful condition that can result in the rectum protrudin…

  12. Erectile Dysfunction

    In Conditions - Any glance at your email spam filter will tell you that erectile dy…

  13. Dr Pixie McKenna

    In Videos - Find out more about Dr Pixie McKenna

  14. Endometriosis

    In Conditions - Around 2 million women suffer from Endometriosis, and it's when the…

  15. Quick Health Advice: Excessive Sweating

    In Videos - Dr Pixie discusses the causes of excessive sweating and the treatme…


Am I Normal?

Share, explore, vote, watch… Am I Normal? is a bold new Channel 4 project that will redefine what you think of as ‘normal’.

Visit Am I Normal? >

Important Notice

The information provided on this website (including any NHS Choices medical information) is for use as information or for educational purposes only and is not a substitute for professional medical care by a qualified doctor or other qualified healthcare professional. We do not warrant that any information included within this site will meet your health or medical requirements. This Embarrassing Bodies site does not provide any medical or diagnostic services so you should always check with a health professional if you have any concerns about your health.


If you want to embed our videos in your site, read our embedding T&Cs here